Author Topic: seizures in my 18 month old daughter. Help!  (Read 6948 times)

Offline amy3js

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seizures in my 18 month old daughter. Help!
« on: March 07, 2007, 09:35:58 PM »
Last Wednesday my 18 month old daughter had a seizure (I didn't know it was a seizure at the time)and then she had another one last night. Both times her fever had just spiked (102.6- 103.6 each time) so they are assuming they were febrile seizures. However the second time she had been taking antibiotics for an ear infection (she was on her 7th day) and so therefore should not still have a fever. I am going to the Dr in the morning and want to be able to ask them to do as many tests as possible, but I am not really sure what to ask for. I have been keeping her temp down so far with Tylenol, but I don't really feel comfortable with the amounts I have to give her to keep her temp from shooting up. And I am still new to herbs and don't feel very comfortable with them in this situation because it is so important that I have a for sure way to control the spiking. Also she has not had any of her immunizations, so any of those illnesses are up for debate. If this is already a topic, I apologize. Please just point me in the right direction. Any info you have would be greatly appreciated. Thanks so much.
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Offline nursegirl

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Re: seizures in my 18 month old daughter. Help!
« Reply #1 on: March 07, 2007, 09:48:55 PM »
As for keeping her temp down, alternate tylenol and motrin.  Give one or the other every three hours.  That way you don't risk an overdose of either one, and it usually works very well to keep fevers down.  I agree with not doing herbs right now, especially since you're not terrible familiar with them.  Sometimes you need drugs.

You said she is on an antibiotic for an ear infection.  I've read (sorry, can't remember where now) that some ear infections are viral.  Therefore, an antibiotic won't make a difference.  It just has to run its course.

I don't really know what tests to ask for.  But I would be sure to make very clear to the doctor how concerned you are and that you want to seriously investigate what's going on. 

I hope your little girl is better very soon!  Keep us posted.

Sarah


Offline amy3js

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Re: seizures in my 18 month old daughter. Help!
« Reply #2 on: March 07, 2007, 10:05:24 PM »
I have some off-brand motrin, but it is children's- not infants. I am scared that the dosing would be diffrent. Should I just stick to the lbs on the label? Normally I would just do it- I know it is probably ok, but I am super nervous about giving her anything right now. I might really help though. The Tylenol seems to be losing its effectiveness and her fever is returning sooner.
You get what you get, what matters is what you do with it.

Offline herbalmom

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Re: seizures in my 18 month old daughter. Help!
« Reply #3 on: March 07, 2007, 10:56:06 PM »
Last Wednesday my 18 month old daughter had a seizure (I didn't know it was a seizure at the time)and then she had another one last night. Both times her fever had just spiked (102.6- 103.6 each time) so they are assuming they were febrile seizures. However the second time she had been taking antibiotics for an ear infection (she was on her 7th day) and so therefore should not still have a fever. I am going to the Dr in the morning and want to be able to ask them to do as many tests as possible, but I am not really sure what to ask for. I have been keeping her temp down so far with Tylenol, but I don't really feel comfortable with the amounts I have to give her to keep her temp from shooting up. And I am still new to herbs and don't feel very comfortable with them in this situation because it is so important that I have a for sure way to control the spiking. Also she has not had any of her immunizations, so any of those illnesses are up for debate. If this is already a topic, I apologize. Please just point me in the right direction. Any info you have would be greatly appreciated. Thanks so much.

Although most Drs aren't familar with it, seizures can be caused by low blood sugar. My oldest DS has always had problems with his blood sugar going down when he's sick, even as a baby. He's 21 now & still has problems with it. He's never had a seizure from low blood sugar while he's sick but it is a possiblity since his blood sugar is so touchy when he's sick so I always kept an eye out for it. It is possible that the ear infection could be a viral or fungal infection (in 1999 the Mayo clinic stated that most chronic sinus infection are fungus, not bacteria & infected sinuses lead to ear infections) so the antibiotics aren't fighting it (& in the case of a fungal infection, posibly making it worse) which is why her fever isn't going down. If the seizures were caused by low blood sugar, I'm not sure how you would test for it, most Drs don't understand or believe it & it may not show on a reg blood sugar test, besides I don't think they do it on a child that young. The reason I say it wouldn't show on a reg test is because it can be triggered by how fast the blood sugar drops when she's sick, not just how low the blood sugar goes. You could get a glucose meter to monitor her blood sugar when she's sick & esp. check it immed. if she has another seizure. I could be totally wrong on this one but it is a possibility & it immed. came to mind when I read this.

As far as her immunizations go, the Drs may try to push you to get her caught up starting right now. There are threads on WTM that cover the whole immunization debate & you should check it out & make an informed choice if you haven't already. Of course the choice is up to you but immunizations can cause seizures on their own so even if you choose to have her immunized in the future IMO the risk would be too high right now.

As far as the doseage for Motrin, use the weight guide on the label or if you want to double check or her weight doesn't match any listed on the label, call a 24hr pharmacy & have the pharmacist look up the amount of milligrams of medicine per kilogram of body weight. A kilogram is 2.2 lbs. If you don't know how to figure it or if your too stressed to think (& believe me, I know your stressed right now) have the pharmacist figure it out for you. You could also call Ask-A-Nurse. If you do this, BE VERY CAREFULL MEASURING THE DOSE. It would be easy to give her to much. Use a baby's medicine syringe if you have one, they are easier to measure accurately than a measuring spoon.

Praying than you find answers. HTH Blessings ~herbalmom

Offline amy3js

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Re: seizures in my 18 month old daughter. Help!
« Reply #4 on: March 08, 2007, 06:23:55 AM »
I had not thought of checking her blood sugar, but she had just finished eating the second time. I have a glucometer for myself, so if it happens again (praying that it doesn't) I will check her.

Also I have decided to wait on the immunizations until at least after she is two, but I have been getting so much flack for it that it is becoming harder. I wondered if any of the things they immunize for could cause seizures if she were to get them?

When she was put on the antibiotics I asked if she might have a sinus infection because around her eyes had been kind of swollen and I was having sinus issues. But the Dr told me that it was very rare for young children to get sinus infections because there sinuses are too small. To me it seems as though that would make them more likely. And it might explain her increasing ear infection?
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Offline MaryAnn

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Re: seizures in my 18 month old daughter. Help!
« Reply #5 on: March 08, 2007, 09:22:41 AM »
if it helps, valerian is indicated as a helper/treatment for infantile seizures
I asked my 2 year old to bring me the flyswatter.  He disappeared, and returned promptly and proudly, jabbering and brandishing a full drinking cup.  I started to become disappointed until I realized what he was saying to me:  Here Mama!! This is for the fly!! He thought I asked for the FLY'S WATER!

Offline mommad5

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Re: seizures in my 18 month old daughter. Help!
« Reply #6 on: March 08, 2007, 10:22:17 AM »
I have a very dear friend that has a son that had a grand mal seizure after getting immunized. I am curious,how long did she have this fever and did she have any other symptoms,such as a rash or anythig?Does she have normal developement for her age?Ex.language,social,motor skills?I hope you find your answers.

Offline kittyninja

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Re: seizures in my 18 month old daughter. Help!
« Reply #7 on: March 08, 2007, 10:43:57 AM »
my daughter has febrile seizures (her 1st at 11 mos) and since it is not really known what causes it she has had them as low as 99. i too was doing the round the clock tylenol and motrin to keep it from spiking (normally for fevers i wouldn't do anything but make them comfortable and let the fever do it's thing.) the motrin or something was making her tummy hurt and making her yucky all around. i started doing ginger baths and teas and that has worked like a charm. i usually strip her down and wet her had and neck and trunk if i can't give her a bath.

someone also mentioned a garlic enema to get the fever down. haven't done it yet though.

the last one she had she woke up from it and was still mottled and jerky but it seemed to be mild.

  i agree on the low blood sugar thing to if she continues having them.
 my dr. at first had a hard time believing that she had a seizure at 99 (and that one was her worse i had to call 911), but since she normally runs 96-97 that could have been a big enough diff for her little body.

Offline floydian

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Re: seizures in my 18 month old daughter. Help!
« Reply #8 on: March 08, 2007, 11:30:37 AM »
My daughter has had seizures also.  She had two before she turned three. 
We had an MRI and a cat scan done on her.  I think that's pretty routine.
Neither showed anything wrong.

The neurologist wanted to put her on drugs to control them.  You have to go the full course with the drugs he wanted to put her on--you can't stop in the middle. 
I had done a bit of research on the internet on side effects of seizure drugs.  I questioned him about the side effects, and her doctor told me there were none.  I told him what I had read on the internet, and he told me that mother's shouldn't read the internet.  He could not believe I did not want to put a two year old on drugs that might or might not work.  Hmmmm.....
At our next appointment, I brought along my husband who has a degree in physics.  He also believed that she did not need to be on drugs for this.  We had also prayed that God would give use wisdom and would show us if we were wrong and did need drugs.  The doctor completely changed.  He answered all my husbands questions, including "if we choose to wait awhile, will the drugs be any less effective later?"  He said the would be no less effective if we decided at a later point to use drugs.  We said, "thank you very much," and left never to return.

As we were leaving, we met a girl in the elevator who had used the same doctor we had just seen.  We asked her opinion of him.  She said that he had her on so many drugs she could hardly walk.  She went to another doctor who worked with natural cures and diet and she felt like a new person.  Yet another confirmation we had done the right thing in refusing to drug our daughter at a critical time in her development.
We haven't had a seizure since that time. We believe God gave us wisdom when we asked. 8)
In some of our research, none of which I still have (sorry), we did read that if a child has had seizures, you want to be very careful about vaccinations.
I did not know that low blood sugar could contribute to seizures, but it makes sense to me.  Low blood sugar runs in my husband's family.
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Offline amy3js

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Re: seizures in my 18 month old daughter. Help!
« Reply #9 on: March 08, 2007, 01:26:39 PM »
I have a very dear friend that has a son that had a grand mal seizure after getting immunized. I am curious,how long did she have this fever and did she have any other symptoms,such as a rash or anythig?Does she have normal developement for her age?Ex.language,social,motor skills?I hope you find your answers.

She has had an on and off fever for the last 3-4 weeks, but the fever started out lower and has steadily progressed. Her only other symptoms are a runny nose. She also has been acting funny since they put her on the antibiotics. She has been extremely crabby and gets angry really easily which is not at all like her. And I have also noticed she seems to grab at her head alto and her eyes look puffy and droopy.

Her development has been normal thus far, so I really don't think its neurological, but the Dr is sending us to have some tests done just to be safe (which I am thankful for). The only other thing the Dr told us is to watch her fever and call back if it gets high again and if she still has it after her antibiotics are gone. Her antibiotics run out tomorrow. So far her temp has stayed down, but she is still acting like she doesn't feel good. But when I tell the Dr's that she is acting funny they all say that she is acting normal for a sick child. but I don't think this is normal. I hate it when Dr's don't listen. I just keep praying that something will happen soon so they will know what is wrong. Thank you all for your posts and info.
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Offline SC

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Re: seizures in my 18 month old daughter. Help!
« Reply #10 on: March 08, 2007, 03:55:59 PM »
Please, follow your instincts. If a doctor's observation/diagnosis doesn't satisfy your concerns, if you think there might be something that he/she is overlooking or dismissing which you think is important, if you cannot get your questions answered . . . .THEN GO TO ANOTHER DOCTOR! GET ANOTHER OPINION!

When a child's health/welfare is at stake, a mother's instinct is a better gauge of what is a valid concern than a hurried, cursory, doctor's opinion, IMO. Go to another doctor, tell him/her that you aren't satisfied with the explanations you've gotten and have concerns. Take the test results with you and see what another set of eyes observes.

Refusing to be ignored can save a child's life!
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Offline BusyMama

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Re: seizures in my 18 month old daughter. Help!
« Reply #11 on: March 08, 2007, 05:53:05 PM »
My son had 2 febrile seizures when he was under 2 I believe.  The first time we took him to the emergency room, and they just checked him out and explained to us that febrile seizures were not too uncommon in children under two.  What I believe we were told and found out in research (though you should certainly double check everyting anyone tells you) is that the seizure is not caused by the fever exactly, but by the quick rise in temperature.  Hence, you can have a seizure as a result of a fairly low fever, as was the case with my son.  The doctors told me it was useless to try to keep the fever down with tylenol, etc. because again it was the quick rise in temp which could happen before you even noticed they had a fever.  Now, the second time my son had a seizure, I wouldn't have taken him in because I knew what it was, but he wouldn't stop seizing.  It was scary.  He kept having seizures even after we took him to the ER and they finally had to give him something to stop.  They ran all sorts of tests and even a brain scan (I believe it was called) the next day and the only thing they came up with which was abnormal was low blood sugar.  We were sent to some specialist who told us to take our son's blood sugar every morning and see if he passed keytones (I believe it was) in his urine.  Well, his blood sugar turned out to be fine.  (By the way there is a lot of poor advice in the medical community about keeping the blood sugar up.  You don't want to give candy or pop like some DR.s told us because that causes an immediate spike in blood sugar and then a very big low.)  Anyway, after a while I believe we just stopped taking his blood sugar and he has been fine ever since.  He is now 10 years old and those two episodes were all he ever had.  I also had a friend at the same time with a 1 1/2 year old boy who had a febrile seizure just once and never again.  I really never tried to keep his temp down because I feel the tylenol and other medications are questionable and have their own health risks.  Also, having the doctor tell me it was the spike in temp and not the actual temperature helped me to see the futility of trying to keep it down artificially.  This is just my experience.  I hope it helps.  I just became a member to reply to this post.  I don't know much about these message boards and I have little time to get online with 6 kids and one due soon.  If you have a question, you can email me.  Thanks. 

Offline hollyolly123

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Re: seizures in my 18 month old daughter. Help!
« Reply #12 on: March 08, 2007, 06:07:33 PM »
when my daughter was 16 months, she got very sick and I tried to let it run it's course because I was just learning about not using doctors so much and a little bout herbs.  Her fever would not go away, and it was high, and all she was doing was lying around and crying, so I broke down and took her to the doctor.  she had a double ear infection and started taking antibiotics.  she improved but was still not herself.  The day after her antibiotics ran out her illness came back!! 

But that week I learned about garlic to treat ear infections and getting a chiropractic adjustment for her to help her ears drain.  We went to a chiropractor who was reccomended by my friend, and very familiar with children.  There was no bone cracking, she just gently pushed on her neck a little and fixed it- no complaints from my dd- she did it while dd was on my lap.  Voiala!!  She was all better in two days!!  I kept on with the garlic oil for a week and a half though.  You can get garlic oil at your health food store, warm the bottle slightly the way you would warm a baby bottle, and have her lay on her side and drop it in her ear.  Give it a minute then switch.  You could just set a garlic clove (peeled) in her ear, like just above her earlobe, that's what I do.  But kids don't like that too much.  You can call the KY chiropractic society at 502 456 1775 and see if they can refer you to someone or an organization in your state.  We use an Activator Doctor, or a chiropractor who uses a small activator device which delivers a painless thump, rather than cracking you all up.  Convulsions are common for young children with a fever, but Dr. Mendelson says (Author of How to Keep Your Child Healthy in Spite of Your Doctor- hes a pediatrician) that fevers really are good to help a child get rid of sickness, unless they reach 106 (unlikely unless heatstroke or poisoning occurs) or continue for more than three days.  My daugher's continued more than three days, and she needed help.  I just wish I'd known how to treat it naturally in the first place.  Are you giving that kid lots of yogurt?  You might consider a heavy probiotic supplement sprinkled on her food to restore the flora the antibiotics killed.  My dd had major digestive problems after the antibiotics.

Offline amy3js

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Re: seizures in my 18 month old daughter. Help!
« Reply #13 on: March 08, 2007, 06:22:11 PM »
Hollyolly123- It hadn't occured to me to give her any yogurt or probiotics. Thank you for that tip! I really hate giving her antibiotics in the first place and that is a good way to help her body balance back out. I have just started learning about herbs and garlic  is so far my favorite. I haven't been using it though, but I will start again tomorrow.

Gina- thanks for the info on the jumping of the fever verses how high her fever is. I think I did read that, but it didn't click in my head until you said it again. I have not given her any tylenol since this morning at 4a.m. and she seems to be keeping her fever down, which I am excited about.

Thank you to everyone for your replies! I am already feeling more confident! I love this forum!
You get what you get, what matters is what you do with it.

Offline hollyolly123

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Re: seizures in my 18 month old daughter. Help!
« Reply #14 on: March 08, 2007, 07:34:24 PM »
I'm so happy for you!  I hope your daugher gets well soon.  You can also make Goot (garlic oil ointment) to massage from behind her ears down her throat to get things moving.  Just search goot on here.  We love it.  It's just olive oil, coconut oil, and garlic blended and stuck in the fridge.  You could certainly do just the olive oil with the garlic if you didn't have the coconut oil

Offline annemarie

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Re: seizures in my 18 month old daughter. Help!
« Reply #15 on: March 09, 2007, 05:59:30 AM »
I am so glad that you daughter is improving!  I read some great advice in "A grain of Salt" the newsletter for www.celticseasalt.com.  A pediatrician, Dr. Genoa said he gives children a solution using 1 teaspoon of salt in one cup of water.  This helps to prevent convulsions in children with high fevers.  He says,"Sometimes when children get a very high fever, they get convulsions.  This is a very serious condition that happens to children all over the world.  We don't know why these children get convulsions.  If they are medically checked out, they appear to be in normal health, except for the fever.  I have found three things imperative for the treatment of convulsions: water, salt and sugar.  The child's body is unable to keep homeostasis without these three elements.  Drinking the Celtic Sea Salt saline solution returns homeostasis in both children and adults."
I just took a wonderful class at the Family Hope Center and they specialize in helping children be seizure free with out medication.  They said that a seizure is simply the brain trying to get oxygen.  They have therapies to help the brain get the oxygen it needs.  If you ever have problems with seizures again, I encourage you to write the Family Hope Center at team@familyhopecenter.org.  They are so friendly and love to answer questions.  I will be praying for your family!