Author Topic: Craniosynostosis  (Read 3679 times)

Offline Isaacsmama

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Craniosynostosis
« on: May 14, 2010, 01:50:52 AM »
I thought for sure there woudl be a thread on this, but cant find one.  Surely someone out there has had issues with this with one of their children.  here is a link
http://en.wikipedia.org/wiki/Craniosynostosis

Im wondering about it as my 4mo seems to have fused sutures and his fontenel has allready closed.  We are not sure what the next step will be, I think it depends on whether or not his head stops growing, as of now, it is still growing.  His head is slightly assymetrical, but you have to really look to notice.

Offline born-an-okie

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Re: Craniosynostosis
« Reply #1 on: May 14, 2010, 04:57:03 AM »
This runs in my husband's family.  So far we have avoided any interventions with our kids.  With our kids, the bulge that occurs due to the early fusion at the front is in the back of the skull.  None of the other problems listed on the wikipedia article have occurred in our kids.  None of them have had developmental problems.  Personally, I would keep an eye on development and continued head growth and not push the interventions unless I saw a problem.  So far everyone's head is a pretty normal shape over all, I'm still watching the two year old.  Just learn as much as you can and listen to your motherly instincts.  I would guess my kids have a fairly mild case of early closure.

Offline jtuten

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Re: Craniosynostosis
« Reply #2 on: August 22, 2010, 04:50:36 PM »
Have you looked into craniosacral therapy at all?  Not invasive at all.  My son has been treated with it because his head was flat on one side.  It was corrected within 5 visits.  Don't know if it would help with craniosynostosis or not but you could research it a little.

Offline motherhen7

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Re: Craniosynostosis
« Reply #3 on: August 24, 2010, 04:01:03 PM »
I would have it assessed by a paediatrician with a referral to a plastic surgeon who specialises in this area.  Craniosynostosis is not something you want to take a wait and see approach with the developing brain needs room to grow.
  A friend had the springs placed on their young child to keep the sutures apart for several weeks to allow room for the brain to grow and it was very successful.  In their case they needed all the sutures to be separated to place the springs.  The child recovered very quickly, and healed up beautifully.  I believe the springs have been used in Sweden for a long time.