Author Topic: Hip Dysplasia (human)  (Read 7792 times)

Offline Monita

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Hip Dysplasia (human)
« on: September 14, 2006, 05:14:24 AM »
I have hip dysplasia. :-[   They found it about 7yrs. ago, said I was born with it.  I already had my two boys and was having trouble with my bladder so they did an x-ray of my pelvic area and found that my hip was not formed properly.  I have a very high tolerance for pain.....well some pain.  This is the only reason why they say that I had not noticed anything wrong.  I did wonder why I kept buying jeans that always had one leg a bit higher than the other. ::)  I played sports all through school with no problems, had two babies and still felt no real pain until recently. 
I had a baby girl :)two years ago.  My youngest son was 8, so big age gap there.  I began feeling more and more pain while prego. with her.  I am now prego. with my fourth and last baby.....due to this problem. :(  I am feeling such awful pain.  I hear my hip popping with every move I make.  It hurts when I sit, stand, lay down and walk....and I'm only 4mos. along. 
I have been to many specialists over the years, have had many MRI's and have even had a board of specialists have a meeting about my hip. :P  They all say the same thing.....they want to operate.   They all want to cut me open!  They want to do a preventative surgery to lengthen the life of my hip.  But they can't guarantee that it will work and they say that if and when I do need a new hip, this preventative surgery will cause that later surgery to be more difficult.  After much discussion with hubby we decided that I will just wait it out.  Take care of myself and see what happens. 
I know that I have little to no cartilage left and they spotted a spur in my bone.  They have also suggested 2-3 days of going to PT but I homeschool so have no time for that! 
 So, does anyone have any suggestions for my hip pain and maybe something that I could take to help my joints and cartilage.  I will not have surgery, will not go to PT and will not take pain killers.
They just don't understand. ::)
This pregnancy is the last and I hope that I can get a bit of help to make it more comfortable. 

Anyone know about bones, joints and cartilage?

Monita :)

Offline ShabbyChic

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Re: Hip Dysplasia (human)
« Reply #1 on: September 14, 2006, 06:13:54 AM »
Hey Monita, so sorry to hear about your hip pain.  Although I am very happy to hear about your pregnancy!  Congrats!  :) 

One of my girlfriends (age 28) has Crohn's Disease and rheumatoid arthritis in her hip as a result.  She had hip replacement surgery, as did my friend Al (age 43), and both have said that they wish they hadn't.  Evidently, once you have hip replacement surgery you have to do it again every 10 years or so, and it never really helped the pain in the first place. 

I also broke my humerus, radius, and ulna in my left arm 15 years ago and had VERY good experiences with physical therapy.  I'd say that keeping the hip moving is best, even though it hurts, because immobility will only make it worse.  And the PT can give you good exercises to do at home; you don't have to go to the office regularly. 

My friend with Crohn's said that Joint Juice and Valerian Root were helpful.  Hope you find some relief.
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Offline Monita

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Re: Hip Dysplasia (human)
« Reply #2 on: September 14, 2006, 01:18:32 PM »
I was told the same thing about the hip replacement surgery.....it only lasts about 10 years.  We are hopping that I will never need one but if i do I hope that the technology is better by then. :)  Thank you for your point on PT, I agree that exercises at home would work better for me, I will look into going back to them in a couple of years after nursing and look into PT.  I do stretches and walk for now.  It just hurts so bad and I can hear it popping....that freaks me out. :-[   I'm sure it just has to do with the pregnancy and am hoping it will go away after I have the baby. ???   I considered if cod liver oil would do anygood.....I will look into it.  I have bought bone Ami but found that it upset my stomach.  Thank you for your encouragement!

Monita :)

Offline SC

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Re: Hip Dysplasia (human)
« Reply #3 on: September 14, 2006, 01:42:58 PM »
Monita, I don't know of anything that can correct a structural problem. However, I did see a report on a new technology called hip resurfacing which preserves more of the bone than replacement surgery. It is recommended for younger, more active patients. Check out this site for some FAQs and some additional links: http://www.activejoints.com/resurfacing.html Your biggest challenge with this method might be finding an experienced surgeon in the United States.

Regarding how to take care for the time being, I would suggest some compression shorts to wear under your clothing. The stretchable material of biker shorts or similar garments should help hold things in place -- especially while the ligaments are so loose due to hormonal changes. In addition, I would get some cotton t-shirt type material and find ways to wrap it around my hips. I'm thinking something like 20 inches by 4 or more feet so that you'll have some overlap to pin. This will also help support the weight of your pregnant belly.

To help with bathroom trips, cut out the crotch of the shorts -- no one will know but you -- and it will keep you from having to rearrange undergarments and wraps when you make those frequent trips. The reason I recommend cotton is so that the fabric will be lightweight and breathable. There's nothing more uncomfortable than synthetic (hot) fibers when pregnant IMO. :P

There is a broth called "Joint Healing Broth" that you would benefit from. Its recipe can be found at http://www.nacd.org/more_information/health/vealbroth.html. There is information on this page that tells you how the broth helps support joint and ligament health.

Let us know how things go.
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Offline healthybratt

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Re: Hip Dysplasia (human)
« Reply #4 on: September 14, 2006, 04:13:15 PM »
In addition, I would get some cotton t-shirt type material and find ways to wrap it around my hips. I'm thinking something like 20 inches by 4 or more feet so that you'll have some overlap to pin. This will also help support the weight of your pregnant belly.

Picturing this on my last preggo belly HAHAHAHAHAHA.  Sounds useful though.  I don't know if this would help the hips or not, but last pregnancy, I discovered belly support garments (belly band) that I thought would be awesome to own.  I never got the cash together for it, but really wished I'd had the chance to try it.  Here are some different options.

Belly Bra
Belly Belt
Belly Girdle
Belly Band
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Offline SarahK

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Re: Hip Dysplasia (human)
« Reply #5 on: September 15, 2006, 01:21:58 AM »
I got an elastic belt that looks like the Belly Belt.  I had problems with pressure on my hip joints because babe rode low and heavy.  I couldn't wear it much 'cuz I'm so short from hip to rib that if my belly was held up like that my lungs were full of baby and I couldn't breath.  Seriously. 

BUT - that said, it did really hold things together and had a variety of straps for adjustment.  If I wasn't so super short I would have been able to enjoy the feeling of all those big, loose bones being held together.

Sarah K
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Offline Grace

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Re: Hip Dysplasia (human)
« Reply #6 on: September 15, 2006, 04:19:19 AM »
In addition, I would get some cotton t-shirt type material and find ways to wrap it around my hips. I'm thinking something like 20 inches by 4 or more feet so that you'll have some overlap to pin. This will also help support the weight of your pregnant belly.

Picturing this on my last preggo belly HAHAHAHAHAHA.  Sounds useful though.  I don't know if this would help the hips or not, but last pregnancy, I discovered belly support garments (belly band) that I thought would be awesome to own.  I never got the cash together for it, but really wished I'd had the chance to try it.  Here are some different options.

Belly Bra
Belly Belt
Belly Girdle
Belly Band
Thes things sound like they would be helpful. However I have always wondered if you support the muscles to much, maybe they won't get as strong as they are supposed to??? Would that make labour harder? Other problems? I don't know. Anybody have any firsthand experience????
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Offline SarahK

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Re: Hip Dysplasia (human)
« Reply #7 on: September 15, 2006, 05:07:59 AM »
Well.... I only wore my belt during the day and only in the last trimester (didn't have it available til then).  I never had any delivery problems with the one I wore it for.  (Since that baby, I lost weight and the belt doesn't fit me.)  I usually push about 10 minutes tops - so that could just be me.  (I tend to be very motivated by that point.) 

Post-delivery, my belly muscles seemed to be the same as after any other pregnancy - no better, no worse.

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Offline SC

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Re: Hip Dysplasia (human)
« Reply #8 on: September 16, 2006, 10:51:15 AM »
When the pelvic area is unstable, it leaves you open to problems that could lead to further injury. Wearing a wrap adds stability until the muscles can be strengthened and the area can be toned through exercise/therapy. Pregnancy, being a temporary state, is one of those times when wearing a belt will help to stabilize the area and prevent strained soft tissue from sagging beyond the point of stability. Click here for a video on how to wrap the area. For further information on pelvic floor disfunction, its anatomy and rehabilitation of the area, click here.
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Offline Monita

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Re: Hip Dysplasia (human)
« Reply #9 on: October 10, 2006, 05:32:10 PM »
Thank you all for your resposes. :-* 

My mind has been on other things lately and have not even had time to think about my hip.....good thing I guess.  The pain is getting better, or I am just getting use to the changes that have occurred during the pregnancy. ???  I have looked into the suggestions made and found them to be wonderful and very practical.

Sc,
I read the information about the new technology and found it to be such a blessing.  Something I will definitely be showing my Ortho Doc., but the problem like you said was that is is still going through trials and tests in most places in the States.  It does sound like just what I would need though, as the problem is with my ball and socket joint in the rt. hip.  The soup would definitely be worth a shot but I have found that I cannot get several of the ingredients here in Okinawa.  Also, the idea for wrapping myself for stability sounds very smart and I will be trying this.  I also read the information about the pelvic floor disfunction and was praising God for your insight and help with this as I did not mention this in my post......but it has been a major problem for me this pregnancy.  I have done hundreds of kegals to no avail.  Thank you for your reply and your insight! :)

HB,

Thank you for all of the links.  I actually have the belly belt and used it last pregnancy.  I found that I was not able to wear in until I was huge.  I should try it now, as I am totally huge already! :D  Last time it seemed to help a little but not much, we'll see how it goes with this pregnancy.  I think the wrapping that SC suggested will be what I try next as I really do feel unstable at times.  My hips seem to need a little extra support these days. 

Altogether, the popping is still happening and is very annoying as I can hear it but I find that the pain comes and goes.  If I sit too much it feels awful, if I walk too much I pay at the end of the day.  I will be digging out my belly belt :)  and trying the wrap, too.  I report on how they are working.  I don't go see my Ortho Doc. until next year but I will be bringing all of the info on that new tech., the only thing that concerned me was that it is metal and the web-site said that your kidneys must be in good health before surgery to help the body deal with possible metal particles?   ??? 

Thank you all!
Love You -----Monita