Author Topic: Torticollis: Recognizing Symptoms & Effective Treatments  (Read 5799 times)

Offline grocerygetter

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Torticollis: Recognizing Symptoms & Effective Treatments
« on: August 09, 2007, 12:43:12 AM »
I have a ds (3mos.) who is going to see a "specialist" next week and I'd love some feedback if someone else has any advice. He's going to be examined for Plagiocephaly (misshaped head, like severe flat head) due to Torticollis (a muscle problem on the right side of his neck caused him to only turn his head to the right). I have a good chiro who has been treating his Torticollis and he's responding very well but even she thinks I should at least check out this specialist to see if we can undue some of this damage. Our pediatrician wouldn't even diagnose him though. So, he will wear a helmet to reshape his skull probably. What are the implications of this? It seems a little weird to me but at the same time his head is not "normal". Thanks :)

Offline ByHisGrace

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Torticollis: Recognizing Symptoms & Effective Treatments
« Reply #1 on: August 09, 2007, 01:25:51 AM »
My friend's son had the same problem,  and the ped.  suggested the helmet,  too.  My friend simply rotated his sleeping position and he eventually had a "shaped" head.  Hang in there.  It will get better.   The Lord will show you what to do.

Offline miff aka Missi

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Torticollis: Recognizing Symptoms & Effective Treatments
« Reply #2 on: August 09, 2007, 05:22:47 AM »
He's going to be examined for Plagiocephaly (misshaped head, like severe flat head) due to Torticollis (a muscle problem on the right side of his neck caused him to only turn his head to the right).
Shabbychic's son was born with this.  She explains a bit here-
http://www.welltellme.com/discuss/index.php/topic,3671.msg35394.html#msg35394

Maybe she'll see this and chime in.  Or you could PM her.  She's a nice gal and would probably be of great assistance to you. 

Also, google torticollis and you'll find lots of web sites with information.  Be as informed as possible when you go to see the specialists.  It will make it easier to understand what they are talking about and will help you know what questions to ask.  This condition seems to be quite common and very fixable.  Your baby may not even have to have a helmet.  Maybe just chiropractic care (like you have already started), physical therapy, and positioning of his head while alseep and awake.  Even if he needs a helmet, he may not need it for very long. 

Missi

Offline ShabbyChic

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Re: Torticollis: Recognizing Symptoms & Effective Treatments
« Reply #3 on: December 20, 2007, 10:40:36 AM »
How's your son GroceryGetter?  Any diagnosis or recommendation for PT?  I think I mentioned most everything on the other thread, but I will say that whether you choose physical therapy, chiropractics, or aggressive repositioning, the sooner you start ANY therapy the better.  Keep us posted.

(And thanks for calling me a nice gal miff aka missi  :))
That's Shabby SHEIK not Shabby CHICK.  Hee-hee.

Offline 4myhoonie

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Re: Torticollis: Recognizing Symptoms & Effective Treatments
« Reply #4 on: December 20, 2007, 03:07:14 PM »
my daughter was born or developed this after birth and we treated it with physical therapy.  basically all we did was stretch it to the opposite side.  i think one could do it at home without all the expense.  also, i wondered if she would have just outgrown it.  she shows no signs of it anymore, even after just 1 year.
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."

Offline Precious

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Re: Torticollis: Recognizing Symptoms & Effective Treatments
« Reply #5 on: June 14, 2010, 03:32:06 PM »
I am a pediatric physical therapist and see babies with torticollis and plagiocephaly frequently.  I agree that most of the stretches/exercises/positioning can be done by the parents if they are so inclined.  I usually go to the home and perform an evaluation and then show the parents how to do the stretches, etc.  It is nice to get measurements so that the improvement in the neck range of motion can be shown objectively.  I also test to see if the child has any delays as a result of the torticollis such as rolling over, lifting their head off the floor, sitting, etc.   If there are delays, then the child will require more PT intervention than the parents alone can do. 

Here is a website with good stretching instructions for:
left torticollis http://www.orthoseek.com/articles/ifs-left.html
and right torticollis http://www.orthoseek.com/articles/ifs-right.html.

Most babies with torticollis HATE tummy time, but it is extremely important!  If it's hard for you to be tough and listen to your child scream while lying on his tummy, then you may want a PT to do the "dirty work" for you. ;)

3 months old seems pretty young to need a helmet.  Most cases of plagiocephaly caused by torticollis will resolve with stretching and positioning.  I would suggest visiting with the technician who actually casts for and makes the helmet.  They may be able to give you a more informed opinion as to whether or not your child truly needs a helmet.