WellTellMe

Remedies & Therapies => Symptoms & Illnesses => Colds, Flus & Viruses => : Charis April 12, 2006, 03:27:59 PM

: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Charis April 12, 2006, 03:27:59 PM
I just got a tick out of my neighbors stomach. It was embedded, but it was swelled up. I removed it with tweezers. I told her she needed to have the Lyme disease test done, but is there any kind of natural remedy or poultice to draw any poison out?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ForeverGirl April 12, 2006, 05:20:23 PM
Black charcoal poultice draws poisons. So does a bentonite clay poultice, and a Plantain poultice. Plantain is a weed that grows in most people's yards in the eastern states.

She sould watch for any achy joints, fevers or swellings, and if they occur, to seek treatment immediately. My Dad had Lyme disease and caught it early, and was successfully treated.

Taking high doses of immune booster herbs would probably also help; elderberry, echinacea, garlic...
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Charis April 13, 2006, 02:07:38 AM
How should she make a charcoal poultice? Also ,just to throw this out there, we keep a can of skoal menthal chewing tobacco handy. It will draw the poison out also and completely eliminate the pain of a wasp bite! I guess it gives the nerves a buzz like it does the person chewing it. :D
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Gabe Rising April 18, 2006, 08:06:53 PM
Also make sure she goes to a Lyme's specialist... a regular doc will soooo often give an incomplete treatment for Lyme's because it is A) a political disease which means there are widely differing ideas on how to properly treat it and what it even is and B) most doc's just treat it as a single infection when many times it is several infections working together...

Also, treat Lyme's early and "hard." Make sure you knock it out as soon as you see symptoms.

--gabe
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys April 27, 2006, 11:58:47 AM
I would love to do my own research on Lyme Disease, but don't have the time, so I am wondering if you could give me a quick list on main symptoms to watch for and/or any links to informative sites.
TIA! ~B
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt April 27, 2006, 12:23:46 PM
I would love to do my own research on Lyme Disease, but don't have the time, so I am wondering if you could give me a quick list on main symptoms to watch for and/or any links to informative sites.
TIA! ~B

LYME DISEASE: A PATIENT'S GUIDE (http://www.acponline.org/lyme/patient/diagnosis.htm)
American Lyme Disease Foundation (http://www.aldf.com/Lyme.asp)
Infections:  Lyme Disease (http://kidshealth.org/parent/infections/bacterial_viral/lyme.html)
Fewer Antibiotics Needed for Lyme Disease (http://www.mercola.com/2003/may/21/lyme_disease.htm)
Lyme Disease:  The Unknown Epidemic (http://www.mercola.com/2001/jul/25/lyme_disease.htm)
Garlic Keeps the Ticks Away (http://Garlic Keeps the Ticks Away)
Lyme Disease Cases Up 70% in the 1990s (http://www.mercola.com/2000/apr/30/lyme_disease_increase.htm)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: faith May 14, 2006, 11:07:07 AM
hey there !  Can you tell me how your dad was treated (that he was successfully treated is great) and did he use antibiotics or did you ever hear of taking herbs to fight it.It is my three year old that has a strange rash on his belly and its also not the typical bulls eye rash that gets bigger and bigger. ALso if we treat him herbally do you think it would be better than antibiotics? I did use anti. with all the other kiddos but I would rather not this time!!!! Hey by the way Congrats on having your new one!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: JULIE Kaufman June 29, 2006, 01:23:34 PM
I was recently diagnosed with Lymes Disease, and although I am still having numbness(one of the many symptoms) I am so grateful to say that I have received help for the terrible fatigue I was experiencing.  My fatigue was incredible.  I am a pastor's wife, and homeschooling mom of four, so yes,  I have normal reasons to be tired!  But I would get so tired and weak at times, I had to lay flat out on the couch!  We were thankful to find a doctor who is treating my Lymes with natural remedies and also antibiotic/antifungal treatments.  However, the fatigue persisted.  My husband I were praying one night about what treatment to pursue, and the very next morning God brought us in contact with a man in touch with a company that offers natural products.  It came through a person we have a lot of condifence in and my husband decided we should give it a try.  (My husband is also very slow to act, stable and not gullible in the least!)   The main product they sell contains glyconutrients and comes in a powder form which is easily manageable taken with juice.  This product is said to help build up in our cells what they are lacking because of insufficient nutrients in our food consumption.   It takes from 4-6 weeks to see results.  About the fifth week of taking this product, I began seeing changes.  And now after two months, I am just amazed at the difference in my fatigue.  I am sooo much better!!  I want to give God praise for bringing me in touch with this product!  Now for the disclaimer-it is a multi-level marketing company.  I know-I have my issues with that as well.  But the company has found it sells much better by word of mouth than by selling it in stores.  It really has worked for me and if you are interested you can email me at labankaufman@netlink.net  I will give you websites to look up so you can study the products for yourselves as well as a # to call for medical questions or questions about the products.  If you are interested in signing up with the company to buy the product(s), I will also give you my associate #.  God's Blessings to you, Julie Kaufman                         
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys July 14, 2006, 09:17:39 AM
I'm gonna try to explain this without getting too long and boring....  :P

After many years of poor health and traveling to all kinds of specialists and nutritionists, my 27yr. old, single brother-in-law has been diagnosed with Lyme Disease by a Lyme Disease Specialist. Obviously since he's had this for years, he now has every other problem in the book- Leaky gut and everything that goes with it. This Dr. has him on antibiotics and a special diet with the promise of good health- finally! Through all this my hubby and I have been doing as much research and reading as we can to help him. Of course much of our learning has been through this forum along with Sally Fallon (Nourishing Traditions), Jordan Rubin (Maker's diet), Dr. Mercola, Donna Gates (Body Ecology), etc. (I mention that to give an idea of the info we've been using to help him.) He's been at our house this week and we are giving him lots of kefir, kombucha, organic meat, our homemade sauerkraut, and good stuff like that.   :) He has also started taking Yeast Assassin, Tummy Tune-up, and Odorless Garlic to replace the Nystatin he was taking. It seems to be working fine!!!  ;D When he's at home (400 mi. from us) he lives alone but there is a wonderful family close that cooks for him so he can stick to his diet as much as possible. But when he is out on the job, etc. he often cannot eat as he should.

My questions are: As long as he is taking these powerful antibiotics (Doxycycline, Ceftin, Zithromax, and Flagyl right now) can his immune system get built up very quickly and can we conquer the yeast as effectively?

Can he possibly regain his health if he would go off antibiotics and follow the Maker's Diet? Since he is following the Lyme Dr's. protocol, how much can we veer from that and still expect results?

Basically has anyone ever known of someone who recovered from an advanced case of Lyme Disease without antibiotics?? Is this a time and place for antibiotics and all we can do is work at detoxifying and having him take probiotics and kefir?

Maybe there are no good answers for these questions, but I'd love to hear your thoughts!

P.S. In reading his Dr.'s literature, it seems he is very balanced and has a good understanding of how important diet is. Almost a natural, nutritionist's point of view.
o dear :P does that make sense? ??? ::)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: visionarymom July 14, 2006, 10:03:25 AM
I recently read about the author of the book, Practical Herbalism, Phil Fritchey, who was diagnosed with Lyme disease a several years ago. After trying all kinds of herbs to no avail, somehow he discovered a very unknown herb to the western world, called Teasel. Long story short, he said it is truly amazing. He feels so much better now. I don't have the article in front of me, but I believe he said he took a tincture of teasel everyday, and within a very short period, did not even feel like he had Lyme disease. He said he even missed a few days taking the tincture with no ill effects!

He gets his Teasel from South Carolina, I believe, in a state forest. They consider it a rank weed, and told him to pull as much as he could! He said he sells his surplus, and there are a few other places one could attain it. But you may have to search for a while. I'll try to find that article and see if there is an email or something.

Sorry I don't know about your other questions, but it sounds like Teasel would be of great help.

VM
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt July 14, 2006, 10:04:30 AM
Have you considered contacting Dr Rubin directly?  Honestly, I don't think the antibiotics are going to help his digestion, but I'm no doctor and know nothing about Lyme disease.  He may be unreachable, but it might be worth a shot.   ???
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: visionarymom July 14, 2006, 12:11:00 PM
Ok, I found the article in Healthkeepers Magazine in the "Ask an Herbalist" section. Couldn't locate the specific article on-line, but they have a website. The recommended dosage is 1-5 drops 3 times daily for the Teasel, so 1 oz lasts a while. I easily found it on ebay, prepared by Dr. Fritchey himself, for $14 per 1 oz bottle.

The article states, "At the risk of melodrama, I can only say that, so far at least, the result has been nothing short of miraculous. Within 3 days of starting with the very small dosage recommended by Wood (1-5 drops, 3 times daily), the fog lifted, the fatigue melted away, and though it took longer, the joint and muscle pain subsided, and has continued to improve since. I feel like my life has been given back to me. The only negative experience with the treatment came through an enthusiastically reasoned, but ill-advised short experiment with higher doses. That quickly produced a massive intensification of symptoms--called the "Herxheimer effect" by Lyme sufferers--that just as quickly went away when the dose was reduced again."

The full article was really interesting, if you can find it. It's in volume 8 issue 2, which I think is the most recent issue.

Dr. Fritchey said he was on major antibiotics for 4 months, but they helped little. So I sure hope you can get some teasel for your BIL!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys July 14, 2006, 12:28:12 PM
Have you considered contacting Dr Rubin directly? 

Yes, we seriously have. Not sure either if he is reachable... Thanks!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: jasmine July 18, 2006, 02:31:08 AM
help! can you tell me how you bought teasel? I searched ebay and searched Dr. Fitchey And you said you found it easily on ebay my husband may have it , almost sure and Ive been searching all morning!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: jasmine July 18, 2006, 02:35:51 AM
help! can you tell me how you bought teasel? I searched ebay and searched Dr. Fitchey And you said you found it easily on ebay my husband may have it , almost sure and Ive been searching all morning!
Sorry I found it !!!!!!!! on ebay!14.00 a bottle. thank you so very much!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: visionarymom July 18, 2006, 06:27:24 AM
Sorry I didn't respond sooner! I can only get on-line once or twice a day. So glad you found it! For the sake of anyone else looking for it, I believe I just googled Teasel Dr. Fritchey. Not positive because I tried a couple different ways. It might have been under "Teasel Lyme Disease". Anyway, sure hope you see improvement!
VM
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys July 18, 2006, 06:33:23 AM
OK, I finally have a minute to thank those of you who responded! We are still reading and researching as we have time, but life is really busy right now for him and us, so thanks again for all the info shared!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt July 18, 2006, 07:15:31 AM
Interesting article.

http://www.autoimmunityresearch.org/lyme-disease/
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt July 18, 2006, 08:25:11 PM
Electro Medicine and Lyme Disease (http://www.newmediaexplorer.org/chris/2004/09/02/electro_medicine_and_lyme_disease.htm)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: emb2x2 July 31, 2006, 01:52:08 PM
My 9 yo son was bitten by a tick.  I'm not sure how long it was on there, but three days after we removed it, there was a red/black/blue area in the direction in which we pulled it off.  This faded and went away in 3 days.  He has no other symptoms, but I have a friend with chronic lyme and I am very worried.  I dont' know if I should start antibiotics.  I had heard that a true lyme skin reaction will last up to 2 weeks if untreated.  That causes me to think this was not lyme, but I am not sure if my info is accurate.  I know the skin reactions related to lyme are sometimes tricky or non-existent.  Of course, my pediatrition just dismissed it saying, well, it's not infected, so we don't need to do anything.  Does anyone have any info on this and esp. on how long the skin reaction usually lasts if it is truly lyme?

Thank you so much!!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt July 31, 2006, 02:54:14 PM
Do you know what kind of tick it was? 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: emb2x2 August 01, 2006, 01:53:27 AM
No, but it has a white spot on the back and it was adult size, but not bloated.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: DawnsEarlyBirds August 01, 2006, 02:20:28 AM
Also make sure she goes to a Lyme's specialist... a regular doc will soooo often give an incomplete treatment for Lyme's because it is A) a political disease which means there are widely differing ideas on how to properly treat it and what it even is and B) most doc's just treat it as a single infection when many times it is several infections working together...

Also, treat Lyme's early and "hard." Make sure you knock it out as soon as you see symptoms.

--gabe
This is extremely important.  We have several friends now who were almost bedridden from Lyme's disease before they found a dr. who would treat them for it.  Their regular md would insist that they did not have it and would not treat them for it, dispite having no other diagnosis for them. Most of them were over 2 years in finding a dr. who would treat them for Lyme's, and then it was up to 2 YEARS of straight antibiotics to put them back on their feet.   My daugher-in-laws father is having a lot of Lyme's symptoms right now, and his test continues to come back negative.  They will not try treating him for Lyme's because of it, but he continues to suffer from his Lyme-like symptoms because they have no other answer for him.  It is one situation where I believe you try it and see if it works.  This is a nasty disease that has treatment if they would just use it.   
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt August 01, 2006, 05:50:26 AM
Anyone know why doctors don't want to treat this?  Never had this experience myself, but this sounds pretty ridiculous, especially if the tick and the symtoms are there.   ::)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: visionarymom August 01, 2006, 06:31:06 AM
I mentioned this on another thread, but for those who have had LD for a while, check out the herb called teasel. I know there's been a tincture available on E-bay, made by an herbalist who himself was diagnosed with LD...after a long while. Anyway, he says the stuff is truly amazing, and it's not too expensive.

VM
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: o2bhealthy August 01, 2006, 09:19:58 AM
Vonner.com is an excellent resource for treating lyme's disease and just good info on treating root causes for all those symptoms out there.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ForeverGirl August 01, 2006, 10:14:48 AM
hey there !  Can you tell me how your dad was treated (that he was successfully treated is great) and did he use antibiotics or did you ever hear of taking herbs to fight it.It is my three year old that has a strange rash on his belly and its also not the typical bulls eye rash that gets bigger and bigger. ALso if we treat him herbally do you think it would be better than antibiotics? I did use anti. with all the other kiddos but I would rather not this time!!!! Hey by the way Congrats on having your new one!

Sorry I missed this!
Yes, my dad did the antibiotics, and within a couple weeks of being infected. We had just visited with a man who battled with LD for 7 years, and almost died, before finding a LD doctor to treat him correctly. Dad immediately went to an LD doctor who gave him one round of the appropriate antibiotics and he was fine soon afterward. The sooner it's treated, the better the results, I believe.

Teasel sounds like a good natural option, but I'd also say to try it under the supervision of an LD doctor that might be open to trying natural remedies so that he can continually check the blood and say whether or not the herb is successful. LD is something you want to take very seriously - especially in a child.

If anyone here does have positive results with Teasel, please share the experience with us all!

Rebekah
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: DawnsEarlyBirds August 05, 2006, 11:34:38 AM
Anyone know why doctors don't want to treat this?  Never had this experience myself, but this sounds pretty ridiculous, especially if the tick and the symtoms are there.   ::)
You might not necessarily have seen the tick, and not everyone gets the classic bullseye around the bite.  Plus if it is on a part of you you can't see and your spouse may not have noticed, then you wouldn't have that "evidence" to help with the diagnosis. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mexmarr October 02, 2006, 07:21:45 AM
The daughter of a  a family has been diagnosed with Lyme Disease.  Apparently she has had it several years, but it was undiagnosed.  She is doing pretty bad.  I don't know much about it, but they said that she will be getting antibiotic injections every day for a long time, like several years.

Does anybody know of natural things that will help speed up the healing process?  Thanks
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: emiowa October 09, 2006, 11:22:04 AM
I definately reccomend testing ASAP. My mother got Lyme's about a year and a half ago, but no one would treat her, and a specialist took a very long time to get an appointment with. She has since contracted gastroperesis (parylization of the stomach) as a side affect, and can no longer eat. Now that she's been able to get antibiotics, the disease is so firmly rooted that taking them makes her even sicker, and she may not ever recover.
Lymes is not something to dismiss, even though (we've found) so many doctors do.   
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: natural October 09, 2006, 12:21:46 PM
Last July my hubby had erlyciosis (other tick-born disease) and this summer my 4 yo son had LD. Then we treated my daughter right after because she was experiencing some effects my hubby did when he had his.

Here is what my Dr. told me...You can test pos. for LD even after you have been treated--for up to a year--and it still doesn;t mean you have it...The LD test detects the antibodies that are specific to LD ...i am guessing that your body continues to produce these antibodies for some time after treatment as a protective measure...Really the only way (I was told) you can tell if you got it all after treatment is by the symptoms (or lack of them).

I think my son had it for a year. It is hard to tell because he came down with some strange symptoms right around the time my hubby was sick, but we didn't even know what exactly he had until 6 months later when the test results came back. We treated him for erlyciosis just to be safe and sure enough it helped (Doxycycline)He was EXTREMELY sick I thought he was going to die--really.

My son and daughter were put on amocycillin (sp?) for 21 days and have been symptom free ever since. I think the reason my son recovered before was that I was giving him lots of prayer and zinc, silver and copper minerals...I quit when the symptoms stopped so it didn't get it all or it just wasn't strong enough??

Anyway we are glad to see the snow coming :) Let the cold take those ticks!! BTW my hubby is extra anxious for deer hunting this year :) ha ha j/k
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Kati*did November 11, 2006, 05:37:52 PM
I know this thread is more about Lymes disease than ticks, but I was just looking through Cabelas website and found these things called Bug Skinz that keep ticks (and everything else) off of you.  And for hunters or people who spend a significant amount of time in the woods, you can get them from head to toe.  It was new to me, anyway.   :D
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Charis November 12, 2006, 03:29:44 AM
Last July my hubby had erlyciosis (other tick-born disease) and this summer my 4 yo son had LD. Then we treated my daughter right after because she was experiencing some effects my hubby did when he had his.


What were some of the symptoms your son had?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: diaperswyper December 11, 2006, 02:59:40 AM
    Does anyone know of a good book on Lyme's disease? Maybe someone's experience with it or at least a book that a normal person can understand?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie December 19, 2006, 04:22:59 AM
help! can you tell me how you bought teasel? I searched ebay and searched Dr. Fitchey And you said you found it easily on ebay my husband may have it , almost sure and Ive been searching all morning!
Sorry I found it !!!!!!!! on ebay!14.00 a bottle. thank you so very much!

hi all, i would like to hear from anyone who has used this stuff.  i just found out my aunt has had Lymes for a few months and is not doing very well.  i would like to help her any way i can and was hoping someone could offer results from using this herb or any other remedies natural or otherwise.  she has gone the regular medical route and isn't doing well.  i am printing these threads to give her, thanks for any help you can offer. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie December 19, 2006, 04:26:45 AM
hey there !  Can you tell me how your dad was treated (that he was successfully treated is great) and did he use antibiotics or did you ever hear of taking herbs to fight it.It is my three year old that has a strange rash on his belly and its also not the typical bulls eye rash that gets bigger and bigger. ALso if we treat him herbally do you think it would be better than antibiotics? I did use anti. with all the other kiddos but I would rather not this time!!!! Hey by the way Congrats on having your new one!

Sorry I missed this!
Yes, my dad did the antibiotics, and within a couple weeks of being infected. We had just visited with a man who battled with LD for 7 years, and almost died, before finding a LD doctor to treat him correctly. Dad immediately went to an LD doctor who gave him one round of the appropriate antibiotics and he was fine soon afterward. The sooner it's treated, the better the results, I believe.

Teasel sounds like a good natural option, but I'd also say to try it under the supervision of an LD doctor that might be open to trying natural remedies so that he can continually check the blood and say whether or not the herb is successful. LD is something you want to take very seriously - especially in a child.

If anyone here does have positive results with Teasel, please share the experience with us all!

Rebekah

i am hoping to hear from anyone who has used teasel or anything else for lymes successfully.  i just found out my aunt has had lymes for a few months, and is not doing well.  i would like to help her any way i can.  i am printing off these threads to send her and would love to hear from you.  thanks.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: herbalmom December 19, 2006, 05:27:49 AM
I would suggest Super Strength Oreganol from North American Herb & Spice. I know that I recommend this a lot but it is potent & effective. Be sure to use the extra strength-it is three x's stronger so it is more cost effective. This is ess. oregano oil mixed w/olive oil. It comes in capsules & liquid. Oreganal is anti-bacterial, anti-fungal, & anti-viral so it gets to the root of illness whatever is causing it. Just so you know, because the oil is taken under the tongue & absorbed through the mouth into the bloodsteam less is needed so it costs less to use than the caps but the oil is strong tasting. There are other brands of oregano that are cheaper but oregano is frequently miss identified &/or sub. w/cheaper oils that can be toxic. NAH&S oregano isn't toxic & has the medical research to back it up. The web site is: www.p-73.com. Check out Dr. Cass Ingram's books  (I got them from the library) for more info about oreganal & very good info about nat. medicine & restoring health.  I keep it around all the time. It works for infections, flu, bird flu, yeast/fungal infections, ect. I don't use it for everthing but it is what I want available for serious illness. Enter oreganol into the search feature to see my other posts about oreganol for more info, the dosages I would use, etc. HTH~herbalmom
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: herbalmom December 19, 2006, 05:31:33 AM
See my post on the Really, really need help for BIL-Lymes Disease thread. I hope it helps. ~herbalmom
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ladyhen December 19, 2006, 09:42:47 AM
To answer the question about good books about Lyme Disease, we have two that have been a good source of information on natural treatment and helping to understand the disease.  This disease ~ and the bacteria that causes it ~ are very different from just about anything else.  It is sort of a 'smart' bacteria; almost a parasitical sort. 

The books are;

  Everything You Need to Know About Lyme Disease   by Karen Vandrhoof-Forschner

  and

  Healing Lyme   by Stephen Harrod Buhner

Our oldest dd has chronic Lyme, for 5 1/2 years now.  She is seeing an MD - classical homeopathic doctor who is treating her with natural medicine.  He has told her that she will never be in perfect health.  This disease can be devastating.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Sweet E December 19, 2006, 10:13:03 AM
:) Hey,

 I'm new around here, but I couldn't resist posting. My whole family has Lyme's disease, including my Grandpa and Uncles! Our cases weren't severe, thank God, but we definitely felt the effects. We used completely natural supplements formulated especially for Lyme Disease from Vonner Health Services. You have to take a urine test before they prescribe the supplements. The test is supposed to test for over a hundred diseases.

My Grandfather, who was on antibiotics before he tried the supplements, said they helped him just as much. One of our friends was diagnosed with ovarian cancer and was not repsonding to radiation. She was tested through Vonner and found to have Lyme. When she took the pills her cancer disappeared.  :o Apparently the Lyme can disguise itself as other diseases? ???

Anyway, I know this sounds like commercial for Vonner, but i thought I'd share what i know.

Elisabeth

: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Sweet E December 19, 2006, 10:24:16 AM
Yeah, I would check out the BIL-Lyme disease thread. I just posted about my family's experiences with Lyme... and what we found that helped.

Elisabeth
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie December 19, 2006, 06:16:23 PM
thanks, gals, i will print out these answers also, guess it was silly of me to post on both threads!  i was just trying to bump them up.  thanks!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie December 19, 2006, 06:16:58 PM
thank you!  i appreciate all your replies. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys December 20, 2006, 05:06:59 PM
Hey, just an update on "BIL" and his health... He chose to stay on antibiotics and follow the Dr.'s plan and is slowly improving! He did say the other day that the biggest thing that helps in his improvement is WHAT HE EATS! Its amazing how that in itself can make or break him and yet it makes complete sense to us. He esp. mentioned that fermented foods and soaked grains are what he feels best on.  ;)

I just thought I'd mention that here in case it would help anyone who doesn't realize the great importance of a healthy diet no matter what meds or herbs you are using to fight the Lyme Disease.

Blessings!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Becky in WV February 19, 2007, 03:05:12 PM
Can a cow get Lyme Disease? If so, can a person contract Lyme Disease if they drink raw milk from this cow?  A lady I know who has Lyme Disease told me that she passed it on to her children (unknowingly) through her breast milk.  This got me to wondering whether we could contract it through the raw milk we drink.  Unfortunately deer ticks are common around here and I know several people who have Lyme's (my mom is one of them).  According to our vet almost all dogs in this area have Lyme's...we in fact had our dog put to sleep last summer--one of her many health issues was that she had Lyme's.      So I don't think it would be far-fetched for the cows we drink milk from to be bitten by a deer tick that's carrying Lyme.  I'm going to ask the farmer if she knows anything about this. In the meantime,  any thoughts?   
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: oneblessedwoman February 19, 2007, 03:45:31 PM
The bacteria that the tick injects when it bites is what causes lyme disease.  There have been reported cases of unborn babies dying due to the bacteria making it's way through the placenta of a lyme infected woman.  There have been tests done on milk that comes from an infected animal, and they have tested positive for the bacteria, but there is no sign that this has caused disease.  It may be that your stomach acid kills them once you drink the milk.... however milk does lower the pH of your stomach, so it seems that they could get past.  I would be very interested to see if anyone else has  more information. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Isaacsmama February 19, 2007, 06:25:56 PM
I suffered through Lyme Disease and treatments for a long time and studied up on the subject.  About 13 years ago, I knew A LOt about it, Im sure there have been advances in knowledge though.  Anyway, Any animal can carry the Lyme spirochete, which causes the disease, but it doesnt cause the disease in every animal.  Im not sure about cows, but I know things like deer (and I was told dogs) can carry the organism wthout having the disease and symptoms like humans get; they are just carriers.  So, no, the cow cant technically get Lyme disease, but they can carry the sprichete.  So, I would imagine it would go through their milk, not sure. 
BTW, if you are ever bit by a tick, it cant pass on the B. burgdorfi to you until the end of its feeding(2-3 days)  so if you get it off right away, you should be safe.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: His#1Girl February 20, 2007, 09:10:01 AM
After my initial introductory post, which referred to the fact that I have recovered from Lyme's Disease, I recieved so many requests for more details that I have decided to post instead of replying to them all.  Anyone who has more questions is of course welcome to PM me.

It is believed that I first developed Lyme Disease around the age of 10 or 11.  I had just started growing, and the rapidity of my upward growth had us believing that the pain was caused by the growth.  The disease crept up gradually, weakening me and eating away at my joints.  When I was 15 I developed Pneumonia, and everything crashed in all at once as the Lyme's finally reared it's ugly head.

A year followed of incessant fever, terrible joint pain, and lots of shaking.  I had always been slender, but now it became impossible to keep weight on.  I stood 5'10" and had difficulty reaching 100 pounds: I was around 90 pounds most of the time.  I would be eating dinner and suddenly my glass would fall because I wasn't strong enough to hold it.  My father and brother's carried me around a lot. 

The doctor put me on antibiotics, but I was so sick while on them it was awful.  I began very gradually to get bette,r but suffered frequent relapses.  I'd be ok for a week or two, then I'd over exert and be in bed for the next week.  Because of my reaction to the AB's, my parents decided to try natural healing.

For a few years, everything was touch and go. I knew when it was going to rain a few days before it actually did because of the pain in my joints.  I was very weak, but gradually got better.  But I was still so touchy I couldn't hold a job and I really wasn't much use to Mommy either.

What finally made the difference was something called OPC's.  I have no idea why they did, but I became strong.  The pain virtually left me, and good nutrition built my weak body back up. 

How much of it was a miracle and how much of it was due to the OPC's and other factor's, I'm not sure.  When I got married, I was still terrified of getting pregnant, bt we had decided God could handle it.  I gave birth to a son 42 weeks after our wedding day, and I had never been helatheir.  The baby was, and is, doing great.

I find it only wise to mention that raw goats milk helped as well, at least with the weight gain.  I still have a hard time getting weight on, ut I don't drop weight nearly so fast any longer.

THe OPC's worked for me, but that does not guarantee they'll work for everyone.  I tried a lot of other remdies that were supposed to help and didn't.  The OPC's were a last resort.  ANd they took a while, 3-4 months before I noticed a difference.  On the other hand, if I stopped takin them, it takes 3-4 months for the pain to show back up.  Or it did.  I've been forgetting them for a long time, or not taking the regularlly, but I'm still doing great.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ladyhen February 20, 2007, 09:33:55 AM
Thanks for sharing your history with the Lyme.   Do you still have it?   Have you had tests to show that you are free of the bacteria?  From what we have experienced and read, it can stay dormant in it's host for years.

And, I know we're all curious to know just what OPC is.  Is it a product name or initials for something? 

I guess I'm asking if you could give us some more in-depth information. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: His#1Girl February 20, 2007, 09:53:45 AM
As far as I know, once you have had Lyme's disease you will always test positive.  This is because current tests do not test for the disease itself: they test for the immunities your body is producing.  I have heard that they have new tests that this is not correct of, but I am not certain. This I do know: the OPC's tend to keep my Lyme dormant, and combined with paying attention to my health I think I'll do okay.  But only time will tell.

Here is a website telling more about OPC's:  http://www.opc.cc/index.html

I never did understand just how they worked myself, and I'm not certain that they cure everything in everyone as is often claimed.  But they did make a huge difference in my life.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: freshisbest February 21, 2007, 01:05:09 PM
Here in CT Lyme's is rampant. Consensus is, get the tick off within 24 hours of the bite and you should be ok. As to injesting milk infected with it...I would have to believe the stomach acid kills it. Or maybe I would just like to believe that!!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt March 07, 2007, 06:45:44 AM
Thank you for your replies.  I am wondering about Lyme's disease, it has come up recently from a few people.  I looked on some other threads and got some information and some recommendations for some books that I am checking out at the library.  I had never considered that, but I have almost 40 symptoms from a list I saw on line, 20 was the number that said you should strongly consider being tested.  I don't know where to start, to be tested I mean.  I know nothing about Lyme's disease right now, I am nursing, could it affect my nursing toddler?  What about becoming pregnant again?  Is antibiotic treatment the only treatment?  I know I will research this on my own, but anyone with any experience or advice, I would appreciate it.  In one way, I would be sooooo glad to know what is wrong with me, but it also seems like something scary to deal with.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Krissy March 29, 2007, 12:08:03 PM
I need help. My husband is positive he has Lyme disease but doctors keep brushing him off.  If he has it then he's had it for 8 years, cause that's when he got the bulls eye rash.  He needs to get treated immediately but we can't get a doc to treat him.  Does anyone know a good doc for this in or around the Seattle, WA area?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Becky in WV April 02, 2007, 08:54:58 AM
For those who may be interested, I found this article from Dr. Mercola  which states that you can get Lyme disease by drinking raw milk. 
http://www.mercola.com/2001/jul/25/lyme_disease.htm (http://www.mercola.com/2001/jul/25/lyme_disease.htm)

I found conflicting information on the WAPF website though.  I would post the link but can't get to their website right now.  Just says it's under construction.  Anyway, it was under FAQ's and it said that you can't get Lyme's from raw milk. 

We talked to our farmer and she was perfectly willing to call her vet and see about getting the cow tested for Lyme's.  But it seems the test could very likely come back negative, if the vet will even do such a thing.  I'm thinking about starting to pastuerize our milk myself just to ease our minds!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: littlemama24 April 03, 2007, 07:58:02 AM
A friend of mine has Lyme's disease.  I will see if I can get her to post on here to clear up some of the confusion.  I know she has done a lot of research on it and has found a lot of controversy regarding the diagnosis.  In her csse the doctors were more willing to jump to an MS diagnosis than treat her for Lyme's. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: drmom April 03, 2007, 08:14:15 AM
Yes, there is LOTS of controversy on Lymes.  Much testing - inacurate results, lots of sick people, too.  There are some things that are working for some of us with LYMES. 

Like one of you mentioned - garlic - 4 Theives aka. Super Tonic will help a lot
Then drinking Papaya Leaf or Olive Leaf Tea seems to really make a differance for our six lymes sufferers.  We drink the tea about three x's weekly, almost every other day, this keeps most of the symptoms at bay once we have the Lymes in remission.  When it flares up. like when we are sick or over stressed, we take additional Olive Leaf capsules or tea to help out.  It works so much better than the antibiotics we were on years ago.  Don't know if it would work for everyone but it has been a blessing to us.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: littlemama24 April 03, 2007, 10:22:49 AM
Okay, the friend I mentioned read through this thread but did not have time to register herself, this is what she said:
Hi, I'm hurrying, so I'm not going to register, but I want you to tell them I'm a little afraid for them.  When your body learns to fight the Lyme disease,
it learns how to fight your own nervous system, because there are toxins in the spirochete which are very similar to your nervous tissue which are targeted by your immune system. 
 Anyone who has a bull's-eye rash has Lyme disease because that is the only  bacteria which will cause it.  That rash can save your life.  If it is identified and you take several months of just doxycycline you will not have it infiltrate your system.  You can stop it for real and for good only at the beginning.  But 50% of people who have it do not have or notice the rash, or because of co-infections, have a very different rash.  I advise you to send them to the following places to make really sure they are getting the right info:
Use the search to find out what natural things people are trying, etc.  Many of these people have been scared half to death by what they have gone through, as I was. 
 
And natural is good, but all of the herbs and spices I was taking (at least 15) while being left untreated only barely kept me doing the bare minimum - plus a mandatory 9 hours of sleep at night and 2-3 hour nap every day - but it was not a life I'd wish on anyone.  Three antibiotics and Armour thyroid is what has me symptom-free and close to normal energy.   
 
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=1

http://www.lymenet.org/help.shtml   this has what to do to get them out of your yard and state reported #s and what to do.

http://www.lymediseaseassociation.org/downloads.html  this has many pictures of rashes, and everything you'd want to know.  It has a really good symptoms list.


-I hope some of this helps.  I am so happy she took the time to put all that info in for you guys.  She is very passionate about this since she struggles with it.
 


: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: upward bound April 22, 2007, 12:28:34 PM
Does anyone know of a Lyme literate doctor who is willing to treat young children?  Our 5 year old and 3 year old both have Lyme disease, but I can't seem to find a Lyme literate doctor less than 3 hours from our home in Delaware.  Our 5 year old is getting worse and I can hardly stand to see her feeling so bad anymore....

My husband, our two oldest sons (10 & 9), my 7 year old daughter and I have been treated by a dr. in NJ, but he won't treat children under 7.   He gave us a referral to a dr. in NY, but that is an all day adventure and one that I am not physically up to right now.

We have had plenty of experience and have learned a lot about this disease.....enough to know that it takes a dr. who is really up on all the latest info.

I would really appreciate any input you all may have!!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: natural April 22, 2007, 04:09:56 PM
Last fall my 4 yo son was treated for a confirmed case of Lymes disease with two weeks of amoxycillin (sp) he has been symptom free since. My 7 yo daughter was treated the same way a few weeks later because of similar symptoms and she fully recovered any symptoms too. I am not sure why they won't treat unless it is really advances or something??? Maybe seek a regular dr near by who would be willing to give antibiotics--I am total anti-antibiotic, but I am glad we went this route.

Bless you in your efforts!! My hubby also got erlyciosis (sp?) the summer before-- not fun at all !!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: SarahLaRae April 22, 2007, 08:25:44 PM
This is not advice but I wondered what the symptoms are?

sarahlarae
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: natural April 23, 2007, 02:51:09 AM
My son had extreme joint pain and swelling, stiff neck, loss of appetite. My daughter was feverish and achy, very pale, loss of appetite. Both had a bite mark with a ring around it.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: upward bound April 26, 2007, 01:40:02 PM
Our 5 y.o. has had symptoms for almost 3 yrs now, but her pediatrician performed the standard ELISA test and it came back negative.  After much research, we have found that the ELISA only detects 30% of Lyme cases.  We then asked for the Western Blot test, but by that time, she had had symptoms for over six months.  The Western blot catches about 70% of lyme cases if it is performed within 3-6 weeks of the tick bite.

As for her symptoms:  Unusual fatigue (this is not normal for a 2 1/2 y.o) stomach pain, migraines, overall achiness, mood swings, just to name a few.  She has been dealing with this for a very long time, but because this is such a controversial disease, I have found that the majority of pediatrician stick with the "protocol" for treatment.

Our daughter never had a bullseye rash, but most people don't.  I never did, my three other children never did, but my husband did.....

One doctor told us that Lyme can seem to go away, then 6 months later you begin to have symptoms all over again.  That is why it is hard to diagnose.  I had several different symptoms, went to different dr's for each symptom, was told I had every thing from too much stress (chest pains), fallen arches (foot pain), allergic reaction to soap (rash on my elbow that came and went), fybromyalgia (back muscle pain) and no apparent reason for migraines after going to a neurologist. 

But when you take all of these symptoms collectively, you have Lyme disease.  Once we found a Lyme literate doctor, he had blood test done that went to lab in California that specializes in Lyme disease (as well as other things).  Apparently, the Centers for Disease Control say that a Lyme test is not positive unless certain bands are positive, however, the ELISA and standard Western Blot tests only test for a handful of strains.  There are other strains that never get tested and you can still be positive.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: MommabyHisgrace April 26, 2007, 03:40:35 PM
I contracted Lyme's Disease when I was pregnant with my second child (just 8 weeks) and was put on massive amounts of antibiotics.  My bite did have the ring around it and actually if I remember correctly my doctor decided not to do the test and just gave me the antibiotics.  After being on this forum I'm realizing that we have had problems with yeast ever since.  Anyway, I still have relapses--stiff neck, achiness, and fatigue--I take Oregano Oil for ten days--just one capsule--and take a probiotic during and for about 10 days after.  If any of my children displayed these symptoms after being bit by a tick, I would not hesitate to give them the Oregano Oil.  Research it out and see what you think.  Anytime I need to use an antibiotic I use this instead and it really does seem to knock it out.  A close friend of mine's dh also does this when his symptoms come back and I believe he took the Oregano Oil instead of antibiotics when he was first bit.   Just my 2 cents!  Will be praying for your little ones!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Becky in WV April 26, 2007, 03:48:52 PM
I'm not sure how much of a drive any of these will be for you, but for what it's worth...a lady who runs a local Lyme disease support group gave me this list of doctors when our daughter was bitten by a deer tick a month or so ago.   I'm not sure which ones of these will treat children...one is listed as a pediatrician though.   We ended up taking our daughter to our family doctor because no one on this list could see her soon enough.  Our Dr. prescribed 4 weeks of antibiotics without a positive test.   But she was on antibiotics the day after the tick bite so I think we caught it early enough.   I know I've seen a website that listed Lyme-friendly doctors in the U.S.  Maybe if you do a search you could find it?

Dr. Mark Sivieri, Laurel, MD  301-490-9911
Dr. James Matthews, Gaithersburg, MD 301-216-2065
Pediatrician Dr. Alan Vinitsky, Gaithersburg, MD 301-840-0002
Dr. Norton Fishman, Rockville, MD 301-330-9430
Dr. Letitia Short, Towson, MD  410-337-2707
Dr. Kenneth Singleton, Lutherville, MD  410-296-3737
Dr. Elisabeth Lucas, Lutherville, MD  410-823-3101
Dr. Richard Berg, Lutherville, MD  410-583-2711
Dr. Julia Wen, Lutherville, MD  410-583-2711
Dr. Sarah Fletcher, Sterling, VA  703-421-7000
Dr. Leila Zackrison, Fairfax, VA  703-359-9300
Dr. Trent Nichols, Hanover, PA  717-632-0300
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: upward bound April 28, 2007, 02:03:15 AM
Thanks for the list of Dr.s!!! This is exactly what I have been looking for....real names and phone numbers ;D
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: upward bound April 28, 2007, 02:15:50 AM
BTW we have tried the oil of oregano as well as sameto (cat's claw), cumanda and burbur for about six months without any major improvement.  However, we all have had lyme so long that it is/was in the chronic stages.  My  husband has had it since he was a teenager.  He is 46 now.  I developed symptoms shortly after we were married.  We later learned that it can be passed in bodily fluids (husband to wife, mother to unborn child, etc.)

This is a very frustrating disease, especially when you think you have it licked, and then you have a relapse, grr.

Our family dr. is willing to give us doxycycline with a relapse, but who wants to keep taking antibiotics?  My husband and oldest son have recently done the parsite cleanse.   That seems to be helping some.  He wants to do the master cleanse next.  I would love to do that, but not until after the baby is born.  I hate the thought that I might be passing this along to my unborn baby, but I am not sure if I want to take any antibiotics right now.  Our lyme dr. said that when a women gets pregnant, their symptoms seems to go away, but that they come back with a vengeance once the baby is born.  He would have me continue on amoxicillan the entire pregnancy, but I quit taking them after the 1st month.  He also suggested that I go back on 1 month prior to delivery.

Not sure yet what I will do.  And am praying that I won't have a horrible relapse after delivery. :'(
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie April 28, 2007, 06:06:41 PM
help! can you tell me how you bought teasel? I searched ebay and searched Dr. Fitchey And you said you found it easily on ebay my husband may have it , almost sure and Ive been searching all morning!
Sorry I found it !!!!!!!! on ebay!14.00 a bottle. thank you so very much!

i am interested in finding out if anyone is doing this or has had results with it? 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: MommabyHisgrace April 30, 2007, 11:08:28 AM
BTW we have tried the oil of oregano as well as sameto (cat's claw), cumanda and burbur for about six months without any major improvement.  However, we all have had lyme so long that it is/was in the chronic stages.  My  husband has had it since he was a teenager.  He is 46 now.  I developed symptoms shortly after we were married.  We later learned that it can be passed in bodily fluids (husband to wife, mother to unborn child, etc.)

This is a very frustrating disease, especially when you think you have it licked, and then you have a relapse, grr.

Our family dr. is willing to give us doxycycline with a relapse, but who wants to keep taking antibiotics?  My husband and oldest son have recently done the parsite cleanse.   That seems to be helping some.  He wants to do the master cleanse next.  I would love to do that, but not until after the baby is born.  I hate the thought that I might be passing this along to my unborn baby, but I am not sure if I want to take any antibiotics right now.  Our lyme dr. said that when a women gets pregnant, their symptoms seems to go away, but that they come back with a vengeance once the baby is born.  He would have me continue on amoxicillan the entire pregnancy, but I quit taking them after the 1st month.  He also suggested that I go back on 1 month prior to delivery.

Not sure yet what I will do.  And am praying that I won't have a horrible relapse after delivery. :'(
Just wanted to say that I will be praying for you--It can be so debilitating and especially when you are pregnant.  I was blessed to have gotten a bull's eye around my bite and was able to treat it right away.  I hope the cleanses work for you and your dh.  Blessings to you and your family.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Eviesmom May 16, 2007, 07:37:06 AM
Sunday I scratched a tick off and had to the remove the head with tweezers.  I have no bullseye but it was kind of red and had a blackish head.  No pus or hot, anyway my husband asked me to go to the Free employee clinic and get it checked out. I did not want to because I feel fine, but I went and he suspects possible Lyme disease. He prescribed doxycycline 100mg for 14 days.  He said to apply warm compresses 4 times a day.  I am kind of in shock, I did have a slight fever.  This doctor is not my regular doctor, I think he is just a practitioner. I asked him if I should get a blood test or see someone else and he said only if I begin having flu like symptoms or the site gets worse.  I am glad I listened to my hubby, he does know best.  Anyway do you think I should see a Lyme disease doctor, what type of doctor are they? 
Thanks,
Heather
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: natural May 16, 2007, 09:15:45 AM
Our regular dr did everything needed to combat the disease in my kids...they were only on antibiotics for a couple weeks and then it was fine.

The reason this dr didn't worry about giving you a test was probably because the tests detect the disease according to the antibodies your body produces. So, if you just got bit, your body probably has not produced enough of the antibodies to make a clear diagnosis of Lymes...My daughter's test came back negative, but the dr said it proabably would. Before the tests were even back, though, I treated her for it with the dreaded antibiotics...my son and hubby had just had tick diseases so I assumed she did too.

I just heard something really interesting on Oprah yesterday. I watch it when Dr Oz is on...he said if you have a tick the best way to get it out is to flip it over and pluck it out. He said that if you torment it by putting vaseline or gasoline or burn it, you will make it regurgitate all the bacteria into you.

He also said not to worry if you happen to leave the head in...as long as you got the body (sack o'germs/bacteria etc.) you will be fine and your body will push the head out eventually.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: freshisbest May 16, 2007, 11:39:34 AM
Wow. Doxy. is a powerful antibiotic that is hard for some to tolerate. We are always under the assumption here that if you get the tick out within 24 hrs you're safe. So we bathe every night in the summer....do " tick checks"...keep the hair short  on the boys....the tick can crawl around for awhile before they bite...so kids can be ' clear' at night and the next day you find one embedded. We are just super vigilant here in tick country.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: MommabyHisgrace May 16, 2007, 12:00:27 PM
Just to throw this in there--my niece was just diagnosed with Rocky Mountain Spotted Fever and they told her the tick needs to removed within 4 hours to be sure you do not get infected.  I know when I was diagnosed with Lyme Disease 7 years ago I was told it was 24 hours as well.  If you are treating the Lyme Disease within a couple weeks of being bit, a good alternative to the dreaded antibiotic is Oregano Oil.  Some have said it didn't work for them, but they had had the Lyme Disease for quite a while.  If anyone is interested in it let me know and I'll post more info on it.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ~esposita~ May 22, 2007, 02:30:26 AM
Help!  I've just discovered a red spot on my DD's neck and I don't know what it is.  We do have a ton of ticks around here, and I do regularly look out for them.  I never saw a tick on her...just this red mark, last night during her bath.  For those of you who have had tick bites, does this look like one?  It is red and she says it hurts to touch it.  I just really don't want it to be LD - but I don't want to jump the gun in thinking it is.  She has no sickness symptoms. 

Any advice?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: freshisbest May 22, 2007, 03:27:54 AM
A tick bullseye will get bigger and bigger...looking in color, more like a bruise....or so go the ones I've seen
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: natural May 22, 2007, 03:59:37 AM
That looks like it could be a spider bite, tick (regular tick) bite, mosquito bite ...or several other types of insect bites... I would keep an eye on it. If it is a deer tick nite it will get bigger and there will be a more definate bullseye. My daughter's bite turned out to be a little bigger than an oreo cookie and my son's  (we didin't know what it was at the time) covered almost his whole chest.

I would put some tea tree oil on it if you think that is too strong by itself you can mix it with a little olive oil or other carrier oil. Tea Tree oil has never let me down with any kind of itch, plus it will keep it from getting infected.

Hoe this helps, lets see what others think.
Sandra
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Isaacsmama May 22, 2007, 05:53:44 AM
A tick bullseye will get bigger and bigger...looking in color, more like a bruise....or so go the ones I've seen
it will lokk like a bullseye but  only about 60% of people that get infrected with Lyme get the bullseye rash.  I never got it which is why it took so long to diagnose me when I had Lyme.
http://www.lymenet.org/picture4.shtml
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys May 22, 2007, 06:25:43 AM
I would say too, that it looks like something my kids often get- a spider or other insect bite. Keeping an eye on it though is a good idea. :)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ~esposita~ May 23, 2007, 03:03:46 AM
Thanks to all who replied.  Here is whats going on now...so naturally I have more questions!

My little girl with no sickness symptoms got a fever yesterday and threw up twice.  (Flu-like symptoms?!?)  The size of the bite (see previous post) seems to be going down and it doesn't look like a bullseye, but frankly, I'm a bit worried.  She also says her neck hurts.  It seems to hurt just on the site of the bite.  Here is what my "logic" is saying:  If it was Lymes, she (1) wouldn't have thrown up; (2) the site of the bite wouldn't hurt, her whole neck would (3) the bite would (probably, but not necessarily) look "bullseyeish" and would grow, not shrink.  So, logic says it is not lymes, so stop worrying.  But...there is the "but I wonder if..." lingering in my mind.  DH says not to worry, so I'm trying not to, but I do know that if, by any chance it IS Lymes, then it needs to be caught asap...and that the symptoms will go away, giving false security.  (Am I making sence or just rambling?)

SOOOO...any advice?  Thanks bunches!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys May 23, 2007, 06:32:01 AM
I hear ya- about not wanting to worry, but still wondering!

As far as treating the Lyme ASAP, that would be in the first few weeks from what I've read. I found a tick attached to me this Spring which looked like a deer tick, but was so small even the Dr. wasn't sure. There was a bright red bruised-looking ring around the bite, but it went away in a couple days. I've still been watching for symptoms, its now been about 4 weeks, and other than a few little "maybes" I haven't had enough to make us convinced I might have Lyme.

So, I think if the symptoms persist it would be worth checking into.

'Nother thought- depending what insect bit her, it could be a reaction. Like people that are allergic to bee stings, etc. Now I'm rambling... ;)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: hodgy October 01, 2007, 08:24:40 AM
help! can you tell me how you bought teasel? I searched ebay and searched Dr. Fitchey And you said you found it easily on ebay my husband may have it , almost sure and Ive been searching all morning!
Sorry I found it !!!!!!!! on ebay!14.00 a bottle. thank you so very much!

i am interested in finding out if anyone is doing this or has had results with it? 


I couldn't find if anyone used this with results.  SO just to bump this pretty old question.  Has anyone ever used the teasel and what were the results?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Simply Kristen December 21, 2007, 12:56:21 PM
bump this thread

: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mauimom April 14, 2008, 09:14:32 AM
Yes, had it twice.  We used an NP who used his own testing and then his own formulas. 
Sorry, I know,not much help, but it is possible to be cured.  I now have very little symptoms left.  And most of that is my own fault.  ::)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Siege April 14, 2008, 09:32:10 AM
My 7yods had Lyme Disease this last fall. We went to our regular Dr, who consulted with a specialist. We did antibiotics supplemented with TTU (all 3 types) and he is now fine. We caught it early enough and did the treatment exactly as prescribed and he is cured! CJ
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Simply Kristen April 14, 2008, 09:41:37 AM
There is a post in another thread about a salt and vitamin c therapy.

: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys April 14, 2008, 09:49:56 AM
There is a post in another thread about a salt and vitamin c therapy.



Here's a link: http://www.welltellme.com/discuss/index.php/topic,17054.0.html
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: just jane June 20, 2008, 03:01:03 AM
My 5 yr dd had a tick embedded into her scalp.  I really believe it was there for quite awhile.   It was engorged with blood and had little black dots of poop around it.   (I feel like a bad mom!!  Her lovely thick dark hair is so hard to look through)
Anyway, I called her DR. and she said if it was a large tick, then don't worry about it.   So, I left it go for a week.   She has had no fever, but 2-3 inches down from the bite, she has now 4 swollen lymph glands.   I took her to the dr. and she decided to put her on 3 weeks of antibiotic.   I am glad to do this as a preventative and obviosly she has some sign of infection going on.    I am OK with her having the antibiotic because she has never had any before and I will give her probiotics every evening and for many months afterward.
Is there anything else I should give a 5 year old after this treatment??
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: natural June 03, 2009, 04:37:01 PM
Wow looks like it has been a while since anyone has posted here, I guess it is that season again. So here is my issue. I have 4 kids -- the 3 older ones all have had Lymes. Now lastnight I noticed that my 2 yo had a tick on the back of his shoulder , not sure how long it has been there. I don't think too long though like a day, maybe.

I kept it so I could look online and it looks like an adult deer tick ..the black thing on the back with orange bottom part of the back.

This was just last night, no symptoms or anything, but what I am wondering is, how long after a bite will I see the symptoms? I should know this with all the experience, but does anyone know if there is a "rule" to go by?

I am watching for the bulls eye and sometimes I see it and sometimes I don't ??? It would be useless for me to take him in for a test unless his body has developed antibodies, so i am not sure what to do...I don't want that bacteria in his body, but also don't want to treat for something he doesn't have --I hate antibiotics (most of the time  ;) ;)

Just venting, thanks for listening, any suggestions welcomed.

Sandra
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: MommabyHisgrace June 05, 2009, 03:18:18 AM
I have had Lyme Disease and my bull's eye came on about 2 weeks after the bite.  Symptoms probably would take a few weeks as well.  We have had so many ticks already this year--I even went ahead and sprayed our yard just to hopefully cut them back.  We were finding them on us everyday!!!  I took my dd in about a month ago because her tick bite looked really red and had a rash around it.  The doctor said he wasn't comfortable treating a child with it unless the test came back positive or there was a distince bull's eye.  So far so good! 

The other thing I wanted to share was that my ND gave me an herbal blend from Kroger Herbs called SPK which is specifically for tick bites.  I take it every time I get a tick bite because I get symptoms even now when I get bit or that time of year comes around when I was bit over 8 years ago!  It really helps with muscle spasms, achiness, and feeling so run down.  Just thought I would pass that on!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys November 19, 2009, 09:19:49 AM
    Does anyone know of a good book on Lyme's disease? Maybe someone's experience with it or at least a book that a normal person can understand?

I know this question is old but wanted to mention a book that is great: "The Top 10 Lyme Disease Treatments" by Bryan Rosner  (http://www.amazon.com/Top-Lyme-Disease-Treatments-Conventional/dp/0976379716/ref=sr_1_1?ie=UTF8&s=books&qid=1258658171&sr=8-1)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen December 22, 2009, 11:48:46 AM
I went to several websites today where I could supposedly find a local lymes disease specialist and I had to give them my email/personal information or buy a book that lists them!  The site that was selling the book was saying that lymes disease dr.s have to stay out of the lyme light for some strange reason.   ???  Odd.  I just want to find out if I can get testing locally.  I read the symptoms again and found nothing about tender points.  It just doesn't seem to fit according to my online research.  Don't think hubby's gonna pay for testing if I can't find any symptoms that sound like mine. I guess that lymes disease and mercury toxicity can be related though.  Anyone got anymore information about that?  Thanks!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen December 30, 2009, 01:17:44 PM
Do not view these pictures if you have a weak stomach! The Vitamin C and salt therapy is fascinating and I've already started Vitamin C flushes for many reason and killing off any pathogens that may be present is certainly one of them. The thought of having anything like this in my body is just creepy, gross!  :o

Borrelia burgdorferi/lyme bacteria photos
http://www.lymephotos.com/bb/index.html

Vitamin C therapy with photos
http://www.lymephotos.com/

FAQ about Therapy
http://www.lymephotos.com/faq/index.html

Printable Treatment Protocol
http://www.lymephotos.com/printableprotocol.html

"Insects, arachnids, and ticks carry many different types of bacteria, viruses, nematodes, and nematomorphs. We have found many strange things, which we have tried to explain. We must say we are not medical professionals. We were just desperate people looking to get better. We have lost all faith in the medical profession. We were tired of having doors closed in our faces. We researched, contemplated, and came up with an idea. Research the late, great Linus Pauling. He took at least 18,000 mg of vitamin C every day. We tried to read everything we could about Lyme disease. Supposedly cows somehow beat Lyme disease. We considered, why cows,why not other animals? Cows love salt. Humans consume less salt today than they ever have. Early Americans consumed approximately 20 grams a day. The consumption has been drastically decreasing with each decade. Could it be that the decrease in salt consumption has allowed these new illness, such as Lyme, Chronic Fatique Syndrome,Fibromyalgia, Alzheimer's Disease, and Gulf War Syndrome to flourish. Now just lately, the whole salt scare has reversed and the researchers admit that they were wrong. So go ahead and shake that salt! As far as treatment goes, the results were forthcoming with the taking of 8 grams or more. We have actually increased to as much as 24 grams, but find that no one really wants to take that many pills in one day. Remember it is a one-two punch: the treatment is both salt and vitamin C. After years of suffering, finally life is back to normal. We still do not know if organisms lie dormant in our body; therefore, the treatment continues, simply as maintenance. The extreme pain no longer exists. The knot on the side of the neck is gone. We are at peace. We wish you all good health! Feel free to contact us with your opinions and questions. Though we may not be able to answer each one individually, we will post findings as they come. Hang in there and think positive thoughts."

http://www.lymephotos.com/lastword/index.html

: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ladyhen December 30, 2009, 04:09:21 PM
mommyjen -

I'm so glad that you brought this thread up again.  Our oldest daughter had chronic Lyme and used this protocol with tremendous results.  She sees a Dr. in Arizona who uses natural methods. 
I totally agree with the hypothesis about salt, too. 
Our daughter has posted a little about her experiences Here. (http://www.welltellme.com/discuss/index.php/topic,17054.0.html)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen December 30, 2009, 04:20:32 PM
mommyjen -

I'm so glad that you brought this thread up again.  Our oldest daughter had chronic Lyme and used this protocol with tremendous results.  She sees a Dr. in Arizona who uses natural methods. 
I totally agree with the hypothesis about salt, too. 
Our daughter has posted a little about her experiences Here. (http://www.welltellme.com/discuss/index.php/topic,17054.0.html)

ladyhen, oh thank you for updating!  You mentioned your daughter "used" to have chronic Lyme...does that mean she is totally better without relapse?  If so, that is wonderful to hear!!  Can i ask what her symptoms were?  Do you feel the salt/vit. C combo was the primary cure or were there other treatments the Dr. used that may have contributed as well.  If you have the time, I would love to hear a bit more.  Thank you!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ladyhen December 31, 2009, 05:10:16 AM

ladyhen, oh thank you for updating!  You mentioned your daughter "used" to have chronic Lyme...does that mean she is totally better without relapse?  If so, that is wonderful to hear!!  Can i ask what her symptoms were?  Do you feel the salt/vit. C combo was the primary cure or were there other treatments the Dr. used that may have contributed as well.  If you have the time, I would love to hear a bit more.  Thank you!

She has listed some information on the WTM thread linked in my previous post, but there is a lot involved.  She has low adrenal and low thyroid function, fibromyalgia, neurological damage, fatigue and muscle weakness, chronic pain, chemical and food allergies, weight loss, and much more.  
She has been considered Lyme free for over a year now, according to our doctor.  She continues  in his care for the conditions listed, and takes a variety of supplements.  
She took the salt and vit. C therapy as well as having IV salt and C treatments a couple of times a year when she went to see the Dr.   She (as well as the rest of our family) uses a large amount of salt and believes it is beneficial.  Of course, we also drink a LOT of water and both the salt and water are good quality, pure.  
After having several severe conditions in our family that we tried to treat ourselves, I do recommend a good natural practitioner.  Our doctor is able to test for exact problem, test his prescribed treatments, and has a high success rate.  He is an MD that is trained in classical homeopathy.  A truly amazing man!  
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen January 09, 2010, 03:06:21 PM
Okay, a milk customer just came by who heard about my food allergies from hubby and he wanted to mentioned to me his Aunt who was having awful health problems and discovered she was allergic to gluten as well as her daughters and their children.  Well things got better for awhile but then she took another turn for the worst and through testing realized she had Lymes disease and her daughter and their children tested positive too.  Now she's doing much better after treatment.  So, I'm just focusing on what to eat but in the near future I do want to look at possible underlying causes of food allergies and Lymes disease was one of them, but now I've heard IRL and am really wondering if this is a possibility?  I forgot to ask if her food allergies went away.  Anyone got any experience?  Lotsaboys?  ;D
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mykidsmom January 09, 2010, 06:22:37 PM
Food allergies themselves are a chicken and egg scenario.  They are caused by food sitting in the gut undigested and putrifying.  Eventually that causes holes in the gut and the putrified food leaks through.  The body attacks the food protein as a foreign body, thereby causing a food allergy.  But poor digestion and absorption have to exist for the food to sit and putrify for that whole scenario to take place.  So the question is, does poor digestion and malabsorption come first and then the food allergy?  Or the food allergy come and then poor digestion/absorption?  I think it's the first. 

That's from all that the ND gave me. 

hth
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen January 09, 2010, 06:29:07 PM
Food allergies themselves are a chicken and egg scenario.  They are caused by food sitting in the gut undigested and putrifying.  Eventually that causes holes in the gut and the putrified food leaks through.  The body attacks the food protein as a foreign body, thereby causing a food allergy.  But poor digestion and absorption have to exist for the food to sit and putrify for that whole scenario to take place.  So the question is, does poor digestion and malabsorption come first and then the food allergy?  Or the food allergy come and then poor digestion/absorption?  I think it's the first. 

That's from all that the ND gave me. 

hth

It helps but leaves me with more questions!  ::)   So what causes poor digestion?  Specifically, can Lymes disease cause poor digestion?  Folks who have lymes say they commonly have food allergies according to my online searching.  So what about lymes causes food allergies?   ???
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 09, 2010, 06:54:17 PM
Funny you mentioned a chicken and egg, Patti. ;D That is the example I was going to share regarding Lyme and symptoms, only in a different way...

Food allergies are a symptom of Lyme and as with all diseases, you don't treat the symptom to achieve a cure but you attack the disease itself. Or as one Lyme Specialist said it, "We treat the chicken, not the egg".

However, since Lyme causes your body to be unable to handle certain foods, eliminating them from your diet is part of the cure. Its just that, like the Aunt in mommyjen's story found out, it doesn't get to the heart of the problem.

Many Lyme sufferers I know find that avoiding certain foods is extremely helpful and frees their body in many ways to fight the fight. So, if you do have Lyme (I sincerely hope you don't) eliminating foods should help you feel better for awhile simply because that is giving your body less stress to deal with. And since this is a disease in which symptoms are the main way to determine improvement, most folks eventually become very tuned in to what foods will or will not effect their well-being.

As far as whether food allergies ever go away, that depends on a person's level of improvement. As a whole, dairy (with the exception of cultured) and wheat seem to be a 'forever' problem, but eventually a lot of foods can be tolerated again.



: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 09, 2010, 07:15:12 PM
As for testing, while there is much research and efforts being made for a more accurate test for Lyme, the best I've heard of for now is the Western Blot. And even then most good LLMDs recommend only a few labs. One of them is IGeneX- its out there somewhere- in Washington or Oregon.... kinda all the same diff to me. ;)

But, this is very important- you cannot go by the normal "positive" or "negative" reading of test for accuracy. If you have only ONE "fingerprint band" you have Lyme disease.

Quoting Dr. James Schaller MD, one of the best authorities on Lyme:
"Many patients and practitioners are profoundly ignorant about how to interpret a Western Blot Test. They say it is either "negative" or "positive". Wrong. If a person has one fingerprint band, they have Lyme disease. These highly specific bands, widely accepted in the world of literature, are 13, 14, 17, 21, 23, 24, 25, 28, 31, 34, 35, 37, 39, 47, 50, 54, 83, 84, 93, and 94. The lab can be a junk lab that invests nothing to optimize their testing kit, but if one of these bands is positive-Lyme is present. IGeneX has the best Western Blot in the world. No other Lab has invested so much, for so long, to create the best test. If your clinician wants to first use an ELISA, simply run. To put it bluntly, the ELISA test as a screening tool is useless, missing even the most obvious PCR positive patients with clear past histories of massive Bull's Eye rashes, which, while not the norm, provide evidence of spirochetes."

hth!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 09, 2010, 07:34:31 PM
A bit on 'why' a Lyme patient needs to avoid certain foods....

-Every Lyme person has leaky gut, so right there you'd need to to be on a strict anti-yeast type diet. No dairy, wheat, sugar (including fruit for the first while), refined and processed foods, etc., etc....

-Every Lyme sufferer has chronic pain, Fibromyalgia, joint pain, migraines and more, so that is the purpose for eliminating nightshades.

There is so much more I could explain if I had time, but this is the basics. And a VERY important basic. ;)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthybratt January 11, 2010, 04:28:45 AM
I have severe fatigue, neurological stuff (that is hard to see in writing :-[), no arthritis...

This post and it's subsequent posts have been split and moved here (http://www.welltellme.com/discuss/index.php/topic,26206.0.html).
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen January 12, 2010, 08:58:03 AM
IGeneX has the best Western Blot in the world. No other Lab has invested so much, for so long, to create the best test.

Can Lymes be transmitted sexually?  I'm looking into the IGeneX lab. Don't want to waste money on tests that are inferior, but it isn't cheap.   :-[
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 12, 2010, 09:35:16 AM
According to the books I've read it can be but I think its more rare. More common is through a tick or mosquito bite, of course ::), or mother to infant via pregnancy and/or breastfeeding.

I know, IGeneX isn't cheap, but its been so worth it for the ones I know who have bit the bullet.  :)
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen January 12, 2010, 09:39:09 AM
According to the books I've read it can be but I think its more rare. More common are through a tick or mosquito bite, of course, or mother to infant via pregnancy and/or breastfeeding.

I know, IGeneX isn't cheap, but its been so worth it for the ones I know who have bit the bullet.  :)

Good to know.  Here's their site: http://igenex.com/Website/#
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 12, 2010, 09:46:33 AM
Guess I should mention that contracting Lyme from via mother or sexually is not normally recognized or acknowledged by most of mainstream medicine.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen January 12, 2010, 10:05:06 AM
I went ahead and ordered a free test kit (complete panel) from the IGeneX site.  When/if I'm ready to test, I need to bring it to my ND and she does the rests and sends it off to them.  The cost is $475.00 for the complete panel.  I'm wondering though...is there a possibility of a false positive? How could I do a little research on this company and their ethics?  Not trying to be suspicious just want to be look well into this decision. Any thought lotsaboys?  Anyone else? Thanks!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 12, 2010, 05:49:02 PM
mommyjen, I don't know much about checking into the Lab, but I do know several people who have received their positive Lyme test through them after testing negative before with other labs. And these folks definitely have Lyme because not only do they have a million symptoms to prove it :), but they are responding to Lyme treatment and improving.

As far as false positive, remember- don't go by 'negative' or 'positive' alone. If you have just ONE fingerprint band, it IS Lyme. So, if you go by that I don't think you will end up with a false positive, kwim?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen January 20, 2010, 06:42:46 PM
A yeast diet is imperative, but many are not effective because they do not understand that in order for equilibrium to be restored to the body a very strict, super low-carb diet must be combined with proper amino
acid-vitamin-mineral supplementation. My experience with thousands of yeast
patients is that if this protocol is not followed, the body will not heal. When the protocol is strictly adhered to we find that even cases such as antibiotic resistant Lyme Disease will disappear. Once the body has been brought back into balance people can revert to a more normal diet.

I am becoming more and  more convinced that if fix our digestion (HCl is imperative for protein digestion and MOST people ARE deficient in HCl to one degree or another) and give our body the correct food/nutrients that it can do an amazing job of healing and even ridding the body of pathogens.  

An EXCELLENT article, although it is obvious the author is selling his protein supplement.  :P
http://searchwarp.com/swa4444.htm

I'm not ruling out Lymes as a possibility but think that getting mercury out is probably the first thing to start with as it mercury depresses the immune system and it seems to me that wheter I have Lymes or not I would need to have them out and if I certainly do then having them out prior to treatment would be important for a strong immune system to make the treatment the most effective.  If I'm feeling great afterwards then there will be not need for testing/treatment.  Trying to formulate a plan that makes the most logical sense.  But definitely learned a lot about Lymes and will keep continue to keep that open as a possible answer to my health concerns!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: healthy2009 January 24, 2010, 03:38:56 PM
I'm not sure how much of a drive any of these will be for you, but for what it's worth...a lady who runs a local Lyme disease support group gave me this list of doctors when our daughter was bitten by a deer tick a month or so ago.   I'm not sure which ones of these will treat children...one is listed as a pediatrician though.   We ended up taking our daughter to our family doctor because no one on this list could see her soon enough.  Our Dr. prescribed 4 weeks of antibiotics without a positive test.   But she was on antibiotics the day after the tick bite so I think we caught it early enough.   I know I've seen a website that listed Lyme-friendly doctors in the U.S.  Maybe if you do a search you could find it?

Dr. Mark Sivieri, Laurel, MD  301-490-9911
Dr. James Matthews, Gaithersburg, MD 301-216-2065
Pediatrician Dr. Alan Vinitsky, Gaithersburg, MD 301-840-0002
Dr. Norton Fishman, Rockville, MD 301-330-9430
Dr. Letitia Short, Towson, MD  410-337-2707
Dr. Kenneth Singleton, Lutherville, MD  410-296-3737
Dr. Elisabeth Lucas, Lutherville, MD  410-823-3101
Dr. Richard Berg, Lutherville, MD  410-583-2711
Dr. Julia Wen, Lutherville, MD  410-583-2711
Dr. Sarah Fletcher, Sterling, VA  703-421-7000
Dr. Leila Zackrison, Fairfax, VA  703-359-9300
Dr. Trent Nichols, Hanover, PA  717-632-0300

Did anyone of you used the above listed doctors. Please let me know. I was diagnosed with Lyme recently and am looking for a doctor.

Thank you
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys January 25, 2010, 04:58:53 AM
A book I highly recommend on Lyme Disease, very definitive and so readable: Cure Unknown by Pamela Weintraub
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys February 10, 2010, 07:15:16 AM
A great documentary for understanding the truth about Lyme is "Under Our Skin". Here is a trailer:
http://www.youtube.com/watch?v=sxWgS0XLVqw

Another really informative video:
http://vimeo.com/2354218
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys February 23, 2010, 06:01:47 AM
Regarding what areas are more endemic to Lyme...

It has become the fastest growing epidemic in the nation and it doesn't really matter where you live or have/haven't been.

There is no area left in the world where ticks and/or the disease cannot be found, except maybe Antarctica.

Most people forget that it's not only deer that carry ticks.

And as most people do not have deer in their yards, it's actually birds, rodents/mice, dogs/cats, squirrels, and chipmunks which carry the majority of ticks into your yard, neighborhood park, etc...

These articles explain it more:

 http://www.medicalnewstoday.com/articles/140407.php

http://www.centuryinter.net/tjs11/bug/l13.htm
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys May 10, 2010, 02:54:51 PM
Time of the year to bring up the awareness again... esp. for our children:

CHILDREN’S LYME SYMPTOMS

I have been doing some research regarding Lyme and signs/symptoms in small children.

For All Children

-dizziness
-neck pain and stiffness in almost 90%
-sore throats
-swollen lymph nodes
-excessive thirst,
-Chest pains in at least 70%, some have palpatations
-Sense of air hunger or shortness of breath, dry cough

-abdominal pain in about 50%, can mimic acute appendicitis
-sometimes vomiting, heartburn
-rashes that come and go, malar rashes, new psoriasis

-migratory arthralgias, joing pain in 50% to 100%
-myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness

-frequent illnesses, dark circles under their eyes
-intermittent red, hot pinnae of ears
-sleep disturbance in over 80%

-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection
*hypersensitivity of skin, scalp and hair
*Hypersensitivity to noise, light, smell
*Alterations of taste
*poor balance and coordination
*Uncharacteristic behavior outbursts, mood disturbances, depression
*social withdrawal
*New onset phobias
*Oppositional behaviors
*Obsessive compulsive disorders
*Deterioration in school performance in over 90%
*Difficulty with concentration and attention in school with easily distractability as well as "brain fog" in over 80%
*New onset of ADD

*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing

Less Commonly:

*Movement disorders-spaticity, ataxia, motor or vocal tics
*Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis
*Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness

Pre-Schoolers and toddlers

- Mood swings, sudden emotional outbursts
- Irritability
- Personality changes
- Regression of motor and social skills (developmental milestones)
- Changes in play behavior, tire easily, less active

- Trouble falling asleep, frequent awakenings
- Nightmares, new phobias, recurrence of separation anxiety
- Diaper rash unresponsive to normal treatment
- Frequent URI's, ear and throat infections, bronchitis, pneumonia

Congenital Lyme Disease

* Infants can be infected with Borrelia transplacentally in any stage of pregnancy and/or via mother's breast milk.

* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transplacentally to the developing fetus.

* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascular anomalies,

intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.

* Infants either infected congenitally or from breast milk can have

- Floppiness with poor muscle tone
- Irritability
- Frequent fevers and illness early in life
- Joint sensitivities and body pain
- Skin sensitivity
- Gastro esophageal reflux
- Developmental delays
-Learning disabilities and psychiatric problems

Infants infected congentially can have

-Small windpipes (tracheomalacia)
- Eye problems (cataracts)
- Heart defects

* Infants bitten very early in life will have many of the same symptoms
- loss and decline in developmental milestones.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys May 10, 2010, 03:20:04 PM
If your child has been bit and shows ANY of the above symptoms, don't hesitate to get them on antibiotics. But it must be at least a 30 day treatment or as long as 6 wks. if you want to kick it. That may go against your "anti-abx" mindset (i have that as well ;) ), but it doesn't even compare with the nightmare of dealing with chronic Lyme the rest of their lives.

If you want to test, the best test/lab to go with for tick borne diseases is IGeneX: igenex.com

You can order a test kit, take it to your Dr. to draw blood and mail it to the lab for testing.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: mommyjen May 11, 2010, 05:59:32 PM


Another really informative video:
http://vimeo.com/2354218

Just watched this. Very interesting and informative!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Pastorswife2B May 26, 2010, 12:36:23 PM
Basic Lyme Protocol
(modified from herbalist Stephen Buhner)

There is more to this depending on individual symptoms, co-infections, etc., but this is a simple core protocol that other things could be added to over time if the need is there.

1. Japanese Knotweed- 2 tablets, 3x per day. The Source Naturals product I linked to says "Resveratrol" but the main ingredient we're interested in is the Polygonum cuspidatum (Japanese Knotweed). Knotweed is contraindicated during pregnancy.

2. Andrographis- 400 mg 3x per day. WARNING: Andrographis is an abortifacient. DO NOT use during pregnancy. 1% of people taking andrographis have an allergic type of skin reaction. If this occurs, stop taking it (rash/reaction will naturally go away in about a week) and simply stick with other core herbs.

3. Raintree Cat's Claw- 2 capsules 3x per day.

4. Siberian Ginseng- 1 teaspoon 2-3x per day. (Herb Pharm brand is the best and most potent on the market, to my knowledge). During pregnancy, don't take more than twice per day.

5. Astragalus- 1,000 mg per day (DO NOT use if Lyme is chronic/symptomatic. Only for newer infections).


This protocol was used successfully by 2 friends (mother/son combo) who had LD for 20+ years (he was infected in utero).  Treatment lasted 12-18months I believe, but at 5 ish years post treatment they are still symptoms free.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys May 26, 2010, 01:23:34 PM
So good to hear they were successful!! Do you know what their main symptoms were and the severity of them?

Also, can you explain why the Astragalus is not for chronic cases and whether your friends took this herb?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie June 21, 2010, 06:11:02 AM
A bit on 'why' a Lyme patient needs to avoid certain foods....

-Every Lyme person has leaky gut, so right there you'd need to to be on a strict anti-yeast type diet. No dairy, wheat, sugar (including fruit for the first while), refined and processed foods, etc., etc....

-Every Lyme sufferer has chronic pain, Fibromyalgia, joint pain, migraines and more, so that is the purpose for eliminating nightshades.


There is so much more I could explain if I had time, but this is the basics. And a VERY important basic. ;)

ok, so you say EVERY lyme sufferer has those, then that can't be my problem, cuz i don't have pain.  i do have a son though who has complained of ankle pain that comes and goes for the last couple months.  after hearing about it for a long time i took him to our family dr.  he said it was just growing pains.  he is very active, always running and jumping. (barefoot) he was told to wear supportive shoes.  his other sypmtoms are eczema (had been gone for a long time, recently came back.  going to do bowel cleanse soon), & other leaky gut stuff, like inability to gain weight, short for his age, alleriges to dairy and seasonal allergies.  a $500 test just to find out seems outrageous!  i honestly think he just has a leaky gut & not lyme's--Brenda what do you think?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: lotsaboys June 21, 2010, 09:07:28 AM
In my experience, and to knowledge, at the time I posted that I'd never heard of having Lyme without pain. Since then I have become aware of the fact that there are a few Lymies who don't deal with much pain- at least not joint pain. Sometimes the ones with less pain have more problem with brain fog, depression, headaches, or fatigue.

Some things to keep in mind...
-Many, many children have had Lyme pain passed off as growing pains. That's not to say that all growing pains are Lyme related.
-There's always a cause for leaky gut...are you aware of what his is?
-Paying for a test can be worth it for the reason alone of ruling out Lyme. Left untreated, it can turn into a nightmare disease.

: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Pastorswife2B June 27, 2010, 04:14:50 PM
I was recently diagnosed with LD and have no joint pain.  Since then my SIL and brother, husband and children have all had the test come back positive and NONE of the adults have joint pain, a few of my kids complain about legs hurting and such. 

For me the biggest red flag for deciding to get tested is persistent food allergies or reoccurring yeast when your diet is healthy.  The medical community has recently become aware that LD forms colonies in your gut called biofilms which eat away at your digestive system.  Because of the unique nature of these colonies the normal methods for reversing a yeast problem don't work, they only temporarily take away symptoms, but the gut is never allowed to repair the damage.

Other symptoms that are connected to LD that are often overlooked.  Adrenal and Thyroid failure.  The Lyme's bacteria produces a byproduct/toxin that binds with our cells' receptors for cortisol and T3 or 4 thyroid hormone so our body is unable to properly respond to these hormones.  This is why many people who are diagnosed with Chronic fatigue or Adrenal failure often respond very positively to treatment for Lymes.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie June 29, 2010, 06:13:50 AM
so if it is a gut problem, then would regular gut cleansing be effective, such as Detox +?  like HB did, 10 days at a time, followed up with probiotics & L Glutamine, etc.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Pastorswife2B June 29, 2010, 05:00:43 PM
Lyme's is a systematic disease that likes to actively infect different parts of your body.  It lives in the brain (and central nervous system), joints, heart, kidneys, and gut; however not all people will have active infections at all these different points.  Due to it's nature as a spirochete it is not very susceptible to many anti-microbials pharmaceutical or herbal so doing something like detox+ will help your symptoms for awhile, but it comes raging back. 

Herbs shown to be affective are Cat's Claw, Andrographis, Japanese Knotwood, Stephania, and Smilax.   These are not mild herbs, most of them are contraindicated in pregnancy and you should do your research on them, but many people who suspect Lyme's will try a protocol of 2 or 3 of these herbs for about a month.  If you experience a relief of symptoms or a significant herxeimer/die off reaction then it is very probable that Lyme's is your issue and a year long regimen is recommended. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: 4myhoonie July 02, 2010, 04:59:11 AM
hmmm.......gets me thinking. thanks!
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Beth July 14, 2010, 01:25:56 AM
Do not view these pictures if you have a weak stomach! The Vitamin C and salt therapy is fascinating and I've already started Vitamin C flushes for many reason and killing off any pathogens that may be present is certainly one of them. The thought of having anything like this in my body is just creepy, gross!  :o

Borrelia burgdorferi/lyme bacteria photos
http://www.lymephotos.com/bb/index.html

Vitamin C therapy with photos
http://www.lymephotos.com/

FAQ about Therapy
http://www.lymephotos.com/faq/index.html

Printable Treatment Protocol
http://www.lymephotos.com/printableprotocol.html

"Insects, arachnids, and ticks carry many different types of bacteria, viruses, nematodes, and nematomorphs. We have found many strange things, which we have tried to explain. We must say we are not medical professionals. We were just desperate people looking to get better. We have lost all faith in the medical profession. We were tired of having doors closed in our faces. We researched, contemplated, and came up with an idea. Research the late, great Linus Pauling. He took at least 18,000 mg of vitamin C every day. We tried to read everything we could about Lyme disease. Supposedly cows somehow beat Lyme disease. We considered, why cows,why not other animals? Cows love salt. Humans consume less salt today than they ever have. Early Americans consumed approximately 20 grams a day. The consumption has been drastically decreasing with each decade. Could it be that the decrease in salt consumption has allowed these new illness, such as Lyme, Chronic Fatique Syndrome,Fibromyalgia, Alzheimer's Disease, and Gulf War Syndrome to flourish. Now just lately, the whole salt scare has reversed and the researchers admit that they were wrong. So go ahead and shake that salt! As far as treatment goes, the results were forthcoming with the taking of 8 grams or more. We have actually increased to as much as 24 grams, but find that no one really wants to take that many pills in one day. Remember it is a one-two punch: the treatment is both salt and vitamin C. After years of suffering, finally life is back to normal. We still do not know if organisms lie dormant in our body; therefore, the treatment continues, simply as maintenance. The extreme pain no longer exists. The knot on the side of the neck is gone. We are at peace. We wish you all good health! Feel free to contact us with your opinions and questions. Though we may not be able to answer each one individually, we will post findings as they come. Hang in there and think positive thoughts."

http://www.lymephotos.com/lastword/index.html




Has anyone ever tried this, that has been diagnosed with lyme disease?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: ladyhen July 14, 2010, 03:45:02 AM

Has anyone ever tried this, that has been diagnosed with lyme disease?

My oldest daughter is still Lyme free.  Some of her story is on this thread;  Vit C & Sea Salt (http://www.welltellme.com/discuss/index.php/topic,17054.0.html)

She had chronic Lyme for nearly 7 years and is still dealing with the damage that it left behind.  Don't know how long remission will last, but for now she is enjoying life. 
She still takes vitamin C and uses a lot of salt.  We are big believers in minerals after all the reading we've done on Lyme and other conditions.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: Beth July 14, 2010, 04:56:15 AM

Has anyone ever tried this, that has been diagnosed with lyme disease?

My oldest daughter is still Lyme free.  Some of her story is on this thread;  Vit C & Sea Salt (http://www.welltellme.com/discuss/index.php/topic,17054.0.html)

She had chronic Lyme for nearly 7 years and is still dealing with the damage that it left behind.  Don't know how long remission will last, but for now she is enjoying life. 
She still takes vitamin C and uses a lot of salt.  We are big believers in minerals after all the reading we've done on Lyme and other conditions.

thank you!   
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: momhome July 14, 2010, 06:30:35 PM
The last few days (since starting Doxy) my legs have been

getting worse like jello. I feel like gumby. When I walk my knees want to

buckle, my hips hurt,and its like I have almost no control over them. Any

suggestions?
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: DHW January 11, 2011, 04:40:48 PM
gwen posted this on another thread:

http://www.prohealth.com/library/showarticle.cfm?id=3990&t=CFIDS_FM

It is an article about the work Ritchie Shoemaker is doing with Lyme Disease and related diagnoses.  He uses Visual Contrast Sensitivity to determine neurological involvement and quite a few other tests to accurately diagnose LD.  The second part of the article explains his approach for an initial appointment.  He treats the infection first the erradicate the bb bacteria and co-infections, and then he detoxes the body of mycotoxins - poisons generated by the infectious organisms.

Dr. Robert J. Rowen recommends Carnivora for LD and other infectious diseases.  This is taken on an on-going basis to prevent a relapse. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: momofCE June 08, 2011, 07:40:05 AM
As for testing, while there is much research and efforts being made for a more accurate test for Lyme, the best I've heard of for now is the Western Blot. And even then most good LLMDs recommend only a few labs. One of them is IGeneX- its out there somewhere- in Washington or Oregon.... kinda all the same diff to me. ;)

But, this is very important- you cannot go by the normal "positive" or "negative" reading of test for accuracy. If you have only ONE "fingerprint band" you have Lyme disease.

Quoting Dr. James Schaller MD, one of the best authorities on Lyme:
"Many patients and practitioners are profoundly ignorant about how to interpret a Western Blot Test. They say it is either "negative" or "positive". Wrong. If a person has one fingerprint band, they have Lyme disease. These highly specific bands, widely accepted in the world of literature, are 13, 14, 17, 21, 23, 24, 25, 28, 31, 34, 35, 37, 39, 47, 50, 54, 83, 84, 93, and 94. The lab can be a junk lab that invests nothing to optimize their testing kit, but if one of these bands is positive-Lyme is present. IGeneX has the best Western Blot in the world. No other Lab has invested so much, for so long, to create the best test. If your clinician wants to first use an ELISA, simply run. To put it bluntly, the ELISA test as a screening tool is useless, missing even the most obvious PCR positive patients with clear past histories of massive Bull's Eye rashes, which, while not the norm, provide evidence of spirochetes."

hth!

Is this true?  My 18,34 and 39 came out positive and my 41 and 83-93 came out ind (indeterminate).  My doctor said lyme's is a possibility.  He started me out on vit c (and other vit.) IV, lots of vitamins and supplements, and cipro, flagyl, and diflucan (to treat yeast-tested positive).  I got so weak and couldn't eat much (I would force myself to eat when I could, All food was disgusting).  I had to stop the flagyl on day 12 even though I was supposed to take it 14 days.  I am supposed to go back to see him soon.  I don't know what he is going to say-if he will think lyme is the cause of my chronic fatigue, achiness, periods not coming etc.  I don't seem near as severe as alot of people.  Also, my sleeping is straightening out.  I am on HTP, and I don't stay out past 8:00.  I am getting better, but still don't feel I could do alot of exercise etc. 
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: DHW June 08, 2011, 08:41:58 AM
It is true that Western Blot tests for Lyme are not read correctly.  One fingerprint is all it takes to be positive.  This has been known among Lyme literate docs for quite a while, but is not widely accepted among conventional and non-Lyme doctors.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: wlwest October 30, 2015, 12:57:10 PM
I see there hasn't been many posts here for quite a while!  I had posted a few weeks ago about being hit with headaches. Turns out it's Lyme. My daughter became sick and had a rash. Her symptoms were similar to mine. Anyway we went to a Lyme doctor. We've both been on doxycycline today is the 3 rd week. She is doing pretty well sometimes she has a headache or is tired. I am still suffering with sever neck stiffness, head pain and getting up is painful. The pressure is terrible. I am also takin b12 shots and plaquenil. Also we are taking alit of supplements, silver shield, vit c, chlorophyll, probiotics, curcumin. I think that's it!  Anyway how long before I can start to see significant improvement?  I am thankful I am as good as I am but it's still tough. I have been researching oils and have some. But I am afraid to do too many things at once. My doctor says to wait until later in treatment to do oils. Any encouragement or help would be appreciated!  I also get so emotional and sad so easily. Especially when my symptoms get bad.
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: kcb April 30, 2016, 08:52:10 AM
Hello wlwest, I guess you haven't gotten any replies, and it's been several months.  :(  How are you doing with Lymes disease?  I have been successful treating three of my kids with homeopathic Ledum 200c for Lymes disease.  Lymes is really tough, and antibiotics don't always kill it.  One of my sons was on antibiotics for four months straight, for Lymes disease, and it didn't really work.  The symptoms declined, but within a few weeks off antibiotics, they returned.  Plus, the antibiotics messed up his gut and gave him stomach aches.  Homeopathy is better.  Here's what I do for my family:

Take Ledum 200c for Lymes disease, twice per day for weeks or months, and then declining in frequency.  At first, you might see some reaction to the Ledum, either an improvement, or possibly a lot of symptoms getting worse all at once.  This is an indication that the remedy is correct and the body is starting to flush out the Lyme organism. 

The longer you have Lyme, the longer it takes to treat with homeopathy.  After the symptoms are healed, you can reduce the Ledum to once per day, for a couple weeks.  Then every other day for a couple weeks.  Continue to decrease in frequency until you're taking it just once per month for a few months.

After you feel better, if you have symptoms again, then go back to twice/day until you are better, and for a couple extra weeks.  Then begin to decrease the frequency all over again. 

I can tell you the stories of how my kids healed up.  The first was a miraculous healing -- God touched my oldest son (12yo) through prayer, and he was instantly well after being bed-ridden for five weeks.  2011.  Praise God! 

The second case was my fourth son.  We found a Lyme bullseye rash on him when he was 7yo, and we did four months of antibiotics.  When that didn't work, I started him on homeopathy, and he gradually got completely better.  That was a couple years ago. 

Third case was my third son (8yo), about a year ago.  We found a tick on him and started Ledum the next day.  I stopped after two weeks, because I didn't know how to do the gradual decrease of frequency.  Within days of stopping the Ledum, my son became sick with the Lyme symptoms, and I started him on Ledum again.  He had a total of four days of acute symptoms, and he has been fine ever since. 

The fourth case was my fifth son (5yo), last year.  We never saw a tick or rash, so didn't know he had Lymes until he started complaining of symptoms: weak limbs, joint pain, headaches, lethargy.  He took a couple of months to heal up on Ledum, and he is still on the once/month doses. 

I hope that helps!  You are welcome to pm me if you want, because I'm not on the forum very often anymore.

Kim
: Re: Lyme Disease: Causes, Testing, Diagnosis & Treatments
: wlwest April 30, 2016, 05:14:02 PM
Thanks for the info. My daughter responded very well to treatment. She has been off antibiotics since February. I still give her probiotics and watch her closely. I am still struggling. I added resvertrol and that has helped a lot. I am still doing the antibiotic route. My doctor changed it some. And of course a lot of supplements and diet. I have ordered some tinctures from the stephen buhner protocol. So I am going to start that when I get that. I do have ledum and I had took some of that myself in the very beginning. I was so scared and then when my daughter had the rash I was too afraid to follow that. But I would use that if we had any more bites. I think I have had this for a really long time. And either I had a second bite or something set it off. So I didn't know if ledum would be good for that or just an acute case. I research all the time. It's so hard to decide what the best way is. I've stayed on the route from my llmd for now. I have a lot of head pressure and neck pain still. That's where it's the worst for me. If I don't see improvement with this latest round of meds I will probably switch to all herbal protocol. I do know it takes time.... It has been almost 8 months. That's a long time to be in constant pain.😕